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Idiopathic/post viral
What is the difference between the two types of Gastroparesis?
I have been told I have Post Viral...what does Idiopathic mean to patients with GAstroparesis?
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Idiopathic/post viral
- By ktmorong12
- Posted January 26, 2008 at 7:50 am · 9 replies
- In Nutrition
- Shared with the public
Explore topics in this discussion:
Surgery Keflex Stroke Paralysis Gastroparesis Ehlers-Danlos syndrome
9 replies
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- By ktmorong12
- Posted January 26, 2008 at 7:51 am
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sorry I posted this in nutrition..I always seem to forget to select the category...ops
- By KE
- Posted January 26, 2008 at 1:50 pm
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Hi there,
I think that you will find that idiopathic means that there is no definable pathology. Kind of means, 'haven't got a clue as to the cause' and post viral means just that. The theory is that you suffer a viral infection and the resultant antibodies somehow cause problems with neurological control of gut.The truth is that they just don't know.There are probably multiple reasons for gut motility failure. I like the post viral option the best because it gives the suggestion that the condition might be more temporary. Lets hope someone gets a handle on the cause our misery soon!
Regards,
K.
- By Gayla1
- Posted January 27, 2008 at 11:36 am
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I know that all my problems started after a staff infection and then Keflex. Dr's couldn't be connected but what a coincidence. It did finally get better but it took a long time. I hope misery is over soo too,
Good luck.
God bless,
Gayla
- By deb1
- Posted January 27, 2008 at 1:40 pm
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That's interesting. I had a sinus infection/possible strep about 3 weeks before my GB surgery (then GP) started and I took Keflex.
D
- By Gayla1
- Posted January 27, 2008 at 6:55 pm
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Yes, that is pretty interesting isn't it?
Gayla
- By twinkletoes1
- Posted January 27, 2008 at 7:28 pm
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ideopathic is what i have they call it that just for the reason that there is no reason behind why you have gotten gastroparesis some will call it neurological, in that the nerves just quit as though they only had a stroke to cause paralysis, post viral is for those who had a neurologic viral infection which caused the nerves to stop working and caused paralysis,either way some get better some don,t they honestly have no defined answer for it.some die from it it is simialar to a silent killer cause most of us don't look sick until its so far and to late.alot of ins. won't cover surgurys that might help they will most tell you they are stil experimental due to they have no reason for why we have gotten this miserable illness.there are some really good web sites under ideopathic gastroparesis you can look into. hope the best for you,good luck.
- By Darla
- Posted February 7, 2008 at 3:35 pm
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you have candida overgrowth.
i have had substantial success with going on the anti-candida diet.
you have to start slow though. small meals (baby food) every 2 to 3 hours until your appetite gets better. then increase. stay away from processed and all sugar and yeast breads.
do not eat bread for a month. it took me months but i have totally improved.
your story seems like a big candidate.
i had "post viral gastroparesis" too. but that's just a name for what they don't know what the heck is going on.
I believe candida or yeast grows over the valves in our systems causing them to be slow and have poor digestion.
there are a million websites on it out there.
let me know what you think,
Darla
- By Kozush
- Posted February 28, 2008 at 1:33 am
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Knowing what caused your gastroparesis doesn't mean it gets better! Doctors know why I have GP, I have it because of Ehlers-Danlos Syndrome, a genetic connective tissue disorder, but there's not a darn thing anyone can do about either the GP/small bowel dysmotility or Ehlers-Danlos that caused it. Heck they haven't even identified all the genetic markers for EDS. Oh well, all you can do is keep trucking on. I have the pacer, haven't had much help from it, but my mom sure keeps hoping it'll start kicking in.
Hope is important, however hoping your GP will magically go away because you got post viral instead of surgical or idiopathic or any other reason I think is being unfair to yourself. We have hard lives, but you should live it up as much as possible. Don't sit around waiting to get better, live your life now.
I also disagree with the person who claims this is all due to a candida overgrowth. That's rather unfair and simplifying the disorders. You said you had Post Viral... well right there, that type is known to get better without much treatment for some people, probably before some people are een diagnosed. Second, what have you to offer for the people who can't take in ANYTHING by mouth? Yeah slight problem...also, no one should do ANYTHING without the advice of their physician.
Sarah
Sarah
- By LL1
- Posted April 13, 2008 at 8:38 pm
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Please explain the disorder you mention- Ehlers-Danlos. I have not heard of it.
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