Ok here I am with about a zillion questions.
I have been battling with stomach issues since December 08.
In and out of hospital..seen lots of docs, Mayo Clinic twice (absloutely no help..mistdiagnosed twice).
Was diagonsed with GP in January. Mayo also diagnosed me with GP in February 09. Landed back in hospital in June. Docs here sent me back to Mayo motility and was diagnosed with dumping. I am definitely not dumping but back to thinking I do have GP.
Gastro doc has run me through all other types of tests with no diag. Now I am ready to have the Gastric Emptying test again to see if I have GP or not.
Just spent a horrible weekend..not out of house and still sick today.
I am at a loss of what to do and am about to come unglued with all of this.
The nausea is absolutely the worse. What in the world does eveyone do for it and how do you function when it hits so hard?? Thought I was better this morning but the nausea is beginning again.
Any info appreciated.
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gp or not???
- By gardenjunkie
- Posted August 24, 2009 at 11:35 am · 7 replies
- In Coping with chronic illness
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7 replies
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- By GPAllie
- Posted August 24, 2009 at 12:02 pm
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Hi gardenjunkie,
I had severe nausea 24/7 until I started using colon/abdominal massage. The technique also helped with the pain. I have a recent post with a link to the youtube video of how to massage your colon.
Also, JoAllison from this group posted instructions on abdominal acupressure.
Why not give these a try. You will eventually, over a couple weeks, become quite familiar with the way your colon and small intestine feel.
My only other suggestion is that there is a test that GIs do not use but that a prominent diabetes doctor uses to diagnose GP. It's called the R-R Interval Study. I've posted about it but haven't heard anyone say they have had it. The doctor that uses the test is Richard Bernstein MD, author of Diabetes Solution. He dedicated an entire chapter of his book to GP and had more to say about GP than anyone I've read. The R-R Interval study is pretty common cardiology test so it shouldn't be difficult to find a place to get it. Dr. Bernstein interprets the results in a way that corresponds to the amount of function of the vagus nerve. Since you've had so much inconclusive or misdiagnoses (I've had GP misdiagnoses so I feel for you) perhaps you might consider this alternative. You may need Doctor Bernstein's book to back you up when you ask you doctor since I find that most docs are pretty closed minded.
I hope that my suggestions are helpful. Nobody should have to live through this difficulty.
I wish you better times. Allie
- By gardenjunkie
- Posted August 24, 2009 at 12:56 pm
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It certainly is becoming old...thanks for the info.
I see my internest today so will bring this test to his attention. As you mentioned, they don't really like an idea if it isn't theirs.
Have a good day.
Gail
- By GPAllie
- Posted August 24, 2009 at 1:08 pm
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Gail,
Check out the summary of dr. berstein's r-r interval info including interpretation of test results.
I posted it in this thread (excuse my typos, it was a lot of typing):
http://www.inspire.com/groups/agmd-gi-motility/discussion/checking-for-true -vagus-nerve-damage/
- By gardenjunkie
- Posted August 24, 2009 at 3:28 pm
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thanks,
will take a look as soon as I return from Doc office.
so sick I am ready to go in hospital and I HATE hospitals.
talk with you soon
gail
- By Novagrad
- Posted August 25, 2009 at 5:44 pm
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When the nausea is really bad, I take IV Zofran (via my hickman), compazine suppository, and liquid phenergan (via my j-tube). The three work nicely together and finally give me relief!
Mimi
- By philsphan09
- Posted August 25, 2009 at 7:04 pm
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Hi Gail,
Welcome to the forum. My nausea is horrible, too. I'm on j-tube feedings, getting my g-tube this week. I'm not allowed to eat right now, and I'm having a tough time adjusting to the feeds so lately my nausea's been a little worse. I use phenergan and marinol, alternating. It does help a bit. Good luck and hope you feel better. michelle
- By Gailete
- Posted August 27, 2009 at 7:10 pm
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I take Phenergan when the nausea hits and then lay down until it passes (usually 4-8 hours). What I hate is the nausea hitting me out of the blue. I was making cookies for my son one day and all of the sudden their it was. Hubby had to rescue me out of the kitchen and get me to bed and then they had to figure out what to do with the cookies in the oven. I mean no one starts to make cookies when they are feeling lousy. I was having a great day, so I thought. But the Phenergan does help. When I lay down I also use a heating pad on my back which helps relax me.
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