gastroparesis

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my daughter is unable to eat almost everything due to gastroparesis.

3 replies

Hi, Eva. I'm glad that you found this site, and I hope that you are able to find helpful information here. What has your daughter tried so far to help with the GP? Is she on any medications? Can she tolerate liquids? Everyone seems to have different experiences with GP, so I was just hoping to get a better idea of your daughter's situation.

I was wondering also if you could tell me more about the situation regarding the damage to her vagus nerve. I read in your profile that some type of damage to this nerve appears to have caused the GP as well as some heart problems. I have GP as well as a heart arrythmia, and I was wondering if there may be any similarities. At this point, my doctors don't know what caused either problem and they have not linked it together, but I have been wondering for quite some time about it.

Anyway, I hope you get lots of support and helpful information here. And if you want to write a little more specific information about your daughter's status with her GP, then some of us may have some suggestions. Good luck.

Kate

Eva,
Is Cha your daughter? I've been talking to her and then seeing your post I realized that your were both from Puerto Rico.
I think that you can find a lot of good advice and information by asking people on the site when you have a question.
People on this site have all different degrees of problems. Some have to have nutrition through tubes in order to continue to functioning. Some have to have special tubes to help empty their stomachs. Some have had surgery to place a gastric pacemaker. Others aren't as severe but still have daily nausea, vomiting, and pain.
I'm don't know anything about the medical system in Puerto Rico so I don't know what or how they have attempted in treating your daughter.
You mentioned that she also some heart problems too. I have read many people's post and several people have heart related conditions along with the GP.
One thing I can tell you is that the GI doctor that I see at Mayo does believe that all of these different conditions are related to each other. He feels that something has effected the autonomic nervous system. The autonomic nervous system basically effects all of our body.
The great thing about Mayo is that every problem you are having is checked out while you are there. If you have heart problems you will be sent to a cardiologist, if you have urinary tract issues, then you are sent to the urologist, if you have headaches and unidentified pain you will be sent to a neurologist. The GI doctor you are assigned takes charge of you. He will consult with you about the health concerns then he decides which tests he needs to do that are related to stomach, esophagus and intestinal tract. He will also refer you to the other doctors. All the doctors you are assigned then while at Mayo, consult each other and work together to give you diagnoses and treatments. It's a team approach.
You can feel comfortable after visiting Mayo that you have been checked by some of the best doctors in the world that are up to date on all the new research, medicines and treatment plans.
I hope that you and your daughter will be comfortable enough to continue writing to all of us on this site with any questions you have...someone seems to always have some advice to share.
Judy

Hi Eva,

I am so sorry. I know it must be scary to see your daughter suffer. I actually suffer from something that prevents me from eating normally as well. Is she able to tolerate liquids? If so, may I reccomend Boost High Protein Chocolate? I have tried a bunch of different calorie packed liquid supplements and that is my personal favorite. Have doctors considered TPN? It is a good nutrition alternative so she remains in decent health while the doctors try to help her. Good luck and warm wishes.
~Sarah

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