I have a 19 yo dd who has severe stomach emptying delay. Daily nausea, (even with Reglan, or Nexium or Phennegran, she can't take Zofran) . constipation (regrardless of what she takes for it and how often).
She is on strong narcotic medication for 2 rare health issues that cause severe daily pain. SO i know this slows the gut a great deal
There are days all she does is throw up, others days it is complete nausea only, some days she can eat one small meal eeven with all the meds she is taking for the nausea.
We noticed when she was in the hospital last month for back surgery that while she was on the IV she had NO nausea at all for 4 days. It was great for her. As soon as they started introducing foods. liquids/ soft then regualr, here came the constant nausesa and eventaully throwing up.
Her old Gastro has aged her out since she is 19. We are searching for a new one/ a motility specialists in the Dallas Texas area.
My question concern it this: the last GI we saw had the stomach emptying test done on her, I sat with the tech and watched the monitor the whole 90 minutes. The computer registered her stomach only emptying at 16% after 90 m inutes. The tech showed me and I saw that the food was still in her stomach after this time, it never moved out. She said it registered at 16% only emptied out. However once we got the report, the tech actually called me at home and told me that the Radiologist had her re evaluate the scan, and change some parameters so that the scan was 'normal'. The tech told me I could 'get a second opinion". I took it that I should. But I am confused how the parameters could of changed, the food was there I saw it and it did not go any where. How could this happen? (1) Any suggestions?
(2) I am afraid of the answer here, but, since she had 'good' results with the IV only nutrition, then once food was introduced the nausea and throwing up returned, does this mean, in your humble opinions that she may be a canditate for a g-tube or J-tube. I am not familiar with the difference in the two. However I am questioning which ever one goes into the stomach as this seems to be where her problems are.
(3) If she should ever have to have a tube put in does this mean she can not eat / drink by mouth at all?
Thanks for you help in all this.