Frustration!!

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Hey Everyone--

I hope you don't mind but I need to vent. I was told last week that I was a good candidate for the gastric pacer and that things would be moving along so I can have the surgery. Now I am finding out that my surgeon may not do the surgery because I am high risk. I have had multiple infections in the past year--even had to be a ventilator for a week and a half. I understand that I am high risk but I have been told there are no other options for me other than the pacer. I am going to see the surgeon again on November 7th to discuss it further but I am nervous that he will say no. Then I would have to start all over trying to find a surgeon. Is anybody familiar with any surgeon who do the pacer surgery in Vermont, Massachusetts or NYC?? The surgeon I am seeing is the only one in Upstate New York to perform the pacer surgery. In the meantime, I am in a major Lupus falre-up because they are reducing my prednisone so my body can heal better after surgery. I have a picc line in my chest and receive all my meds through it. I can barely hold down liquids and solids are definitely out. As you can tell, I am very frustrated. This site has helped me tremendously because I know you all understand what I am going through. Thanks for letting me vent--today has not been a good day.

2 replies

look at this and try it out.

http://www.drpepi.com/stomach-problems.php

i have found more answers this route.
my regular doctors are shaking their heads so I had to try this route.

God bless,
Darla

Hi Michdey,

I am writing back to let you know I don't mind you venting at all. I am offering you my sympathy and support. I am sorry you are not having a good day. I understand your frustration. I hope you can find a surgeon that you trust. I also can see why the doc was relucted to operate on account of your history of infections. If an infection were to start at the surgery site, your life could be in danger and the surgery would have been for nothing and or could lead to needing even more surgery. I say this as a friend who has had a ton of surgery and has been suffering the complications ever since. And I did not even have an infection. My brother suffered terribly for 12 years from an infection he got in the hospital before dying from that infection.

I have had a pretty bad week as well. Having alot of trouble finding anything I can eat. Am able to eat icecream and chocolate and liquids. Being sick of the liquid diet and not really a chocolate person I verved off into eating other candy. And got my self real sick. The last few days I have been only liquids only and part of me is feeling better but I am still blocked (since Monday). I won't go back to the hospital because I had a bad experiece there in June and I don't want anymore surgery. I am trying hard to train my mind not to want anything that is not liquid. I bought a juicer. I already drink and love fruit juice (still), but haven't been able to eat any of the vegtables I used to love. Found out I am not into drinking vegtable juice except a little V8 now and then. But if I pulverize vegtables and then cook them in the crockpot in thier juices and then strain it, I like the soup and it feels like I am getting something healthy. I have developed an adversion to can soups after a year and a half of a liquid diet. But hopefully being able to experiment with different soups recipes, and straining the solids out, I will be able to vary my diet in a healthy manor. And hopefully the Miralax and senocot, and fax seed oil capsules will eventually work to clear my system. I am mad at myself for not having the displine to stay away from the food that makes me sick. I am hungry and think about food and how I wish I could have this or that all the time. If I am bad and make myself sick, I behave for a few days or longer until I feel better. Then I cheat again.

Anyhow- I am hoping that something good happens for you.
-Nancy

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