Does Gastroparesis Ever Go Away or Get Better

Does this ever go away? Does it ever get better? It just seems that every year it gets worse for me. Eating or not eating nothing seems to help.

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My motility specialist said the only patients who had recovered completely were those that had gotten gp after a virus. It makes sense in a way because if a virus affected the nerve it could recover over time (am thinking of shingles).

For people like me whose vagus nerve was damaged he said that within the first six months was when you would see whatever improvement you were going to have (very similar to a spinal injury). I would love, love, love to wake up and have this be gone.

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I was recently diagnois with this and i'm on reglan, i take it before every meal and before bed. I was in the hospital for 10 days. i have lost alot of weight.

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I have heard accounts of improvement. My motility doc said this via email, reiterating what he said in clinic: It is hoped/seen sometimes that "continuing the medications at a stable dose will lead to neuronal remodification in the GI tract and along the gut brain axis."
Got my fingers crossed about this. No idea how long he meant for that to possibly take place. (I have a follow up in a few more weeks, just my second visit to the motility clinic at UNC. I'm on domperidone, mirtazipine, buspar, and miralax. I'm improved a fair amount on this.
They use the mirtazipine (aka remeron) for nausea pathways. It has REALLY helped a lot! The buspar helps with the accomodation of the stomach, which is the relaxation to take in our intake, then move it to the other end of the stomach.

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I was diagnosed 3 years ago but my symptoms came on over several years before. I was told a different diagnosis for each symptom. Then in the last part of 2007 I started the big decline. I had severe symptoms and dropped 55 lbs in about 3 months. That is when we did the test . My dr. did not tell, but I did ask him about viral recovery time and he said most viral recover in the first 12 months. But mine was not viral, he never thought it was.
I hope that we all have a possibility of full recovery in future year!!!
Try to hang in there and focus on the positive things in your life. It is VERY difficult sometimes! We all have our bad times. We will be here when you become overwhelmed. Sorry you are going through a rough time right now :-(

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I have heard / read that if the GP is post viral it could take up to 5 years to get better.

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From research I've done and conversations with my doctor, gastroparesis can often be managed but the only time (as of right now) that it will go away is if it was caused from a virus. Mine is ideopathic which means I can cross my fingers and hope that it is viral. My doctor said if I still have it 3 years from the start of it, I will have it for life. With gp your stomach will empty slowly regardless of what you eat...some things just delay it even further like fat and fiber. I still vomit daily but I'm trying a new diet plan this week to see if I can find something that will stop the vomitting. Once I accepted that this is the way it is, I became much more open to finding ways to live as normal a life as I can.

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I am so sorry, sweetheart. My heart hurts for you and for all that are struggling everyday. Someone has to help. You know the drill, we all do. Emerg. rooms, doctors and nurses that don't know about the horrors of this disease, no veins for IV because you are dehydrated by the time you make it to the hospital. Right now, my daughter Shella says that she looks 9 months pregnant and if she does not get a BM she knows what is in store for her. Someone has to know how to help. I pray the answer is coming soon for you all and for us Moms.

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I know how u feel, i never seem to have good days, and feel like a get worse as the days and months go bye. I live in hope of finding a gi that can help me, and really cares that ma life is falling to bits. I think once i find the rite gi things might improve for me. I hope things get better for you too, just know yr not alone xx

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hiya - i was told that in the case of eating disorders , when food intake and weight improve so does gp - mine is ideopathic gp- but definately caused by a stomach virus in my opinion and i have had it for 20 years now- so i am unsure if viral gp does improve - i HOPE it can !!!!!

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Shellygale hi my name is Mechieal and I have had this for almost
a year now and I have heard of people who have gotten better but
only actually heard one account of this. I don't think anyone knows
exactly if it will if viral or not it is so individual just like the illness
itself. I am also not sure things get worse or just flow up and down
over time. I am a christian and I believe God has a plan for me and
everyone here. I trust he is taking care of me and I pray everyday
for good days to feel good as good as I can and that he will not allow
this to be any more than it is today. I believe he will answer prayer even
our prayers for a cure and better treatments along the way. If you all need
encouragement google tzp 101-102 this is a new treatment like domperidone
but better and is currently in the last of the clinical trials and so far has
few side effects and at 3 different doses it shows great gastric emptying in
the patients it is due to be out as early as 1213!!!! So like Shellsmom do not
give up hope please and pray if you don't pray start!! God is still in the miracle
business and he does answer prayer so join me and don't lose hope please!

Praying for you all heykid

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I can only speak for myself but I felt like I was in "remission" for about two years. I could eat what and when I wanted to, had no pain or cramping, had normal bowel movements, and no loss of energy. I am now into 6 months of eating very little (and only losing 11 pounds....) no energy, cramping, and diarrhea which is really constipation in disguise.
I am trying all different kinds of things but nothing seems to help.
Try anything and everything you can. Try to stay positive (it IS hard but once you get down...it just gets worse)
Don't give up trying to find someone and something that helps. I think all of us who struggle with GP are extremely strong individuals - most people would have given up but everyone here is so supportive of each other and willing to share any thing that may help. I pray for everyone with this disease every day.
Donna

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It helps to have a good doctor. I am still trying to figure out what I can eat. It seems like one week you can eat and go out and do things and the very next you are incapable of dojng anything but experiencing pain. Mine is also ideopathic gp, but I believe it was caused by a virus and too many antibiotics. My doctor believes that the rhythms of the stomach, etc. can be reset. I have to keep this in mind as I keep trying things, so i do not give up. I am getting domperidone shortly and I hope that will be helpful because I have not had much success with reglan......has anyone else had problems with the reglan?

I do not think anyone will really give you a time frame, but if it took you time to get sick.......it will take you time to get well. It is important to have people around you who care.

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My gp was from a virus and I got better. I never had vomiting, but I had pain and cramping. I gradually lost weight, and had to keep eliminating things from my diet. Then the weight loss picked up. I had the virus in April of 09, got down to 82# in Dec of 10. Admitted to Cleveland clinic Jan 2011 and Started TPN. I only drank clear liquids for about 2 1/2 months. I stopped the TPN the end of May. I have been able to gradually add more foods to my diet. I am currently 103#. I still have to eat smaller meals more frequently and have to watch the fat. I can eat a few french fries, no other fried food. But I can have a decent amount of fiber and raw fruits and veggies. When you get malnourished, your digestive system gets worse until it cant tolerate anything. My labs looked normal until I started the tpn. I was dehdrated with normal labs. The tpn hydrated me and my Albumin, Hgb, Hct all dropped. I nver believed that I would get better, it was Dr Kirby at the Cleveland Clinic who thought I would and he was right! Sarah

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