botox injections for GP

I was diagnosised wit GP abou a year ago and I have just heard about botox injections that may help with pain and nausea. I have constant nausea and I get severe stomach cramps/pain that causes me to almost pass out. I have been to several gi doctors (including one a Vanderbilt Medical) and none of them have suggested this treatment. Does anyone have any suggestions for me? Plus, I live in Tennessee does anyone know of a gi doctor that is willing to try this? I am desperate for some relief and no meds seem to help. Thanks so much!

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Some people respond very well to it, others, like me, don't respond much, if at all. The procedure itself was very easy to go through. However, my new GI doc said they are not offering it to idiopathc patients, as they are seeing much less success than the diabetic ones.

Diana

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Thanks Diana for your response. I do have idiopathic gp, so that would make a difference for me. I am trying to find anything that will help the nausea or pain. Thanks again!

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I have idiopathic gp too and had a Botox injection. Not only did it not work for me, I had an allergic reaction to it and ended up in the ER. Studies, to date, have shown that it is less than 50% effective in patients studied so maybe your docs don't think the benefit vs. risk is worth it. Have you seen a pain management specialist? If not, please do. The pain/nausea cycle is a vicious one that if you can break it, the nausea may be lessened. Another thing to think about is oral medications with GP. Most medications are absorbed in the small intestine after being broken down in the stomach. If you emptying is impaired, then it may take much longer for your oral meds to be effective. I would find out if there is a liquid or sublingual preparation for your medication. Luck or unlucky for me, I have a Hickman Cath so I can my Zofran IV. I take phenergan for breakthrough nausea and tramadol for pain. I also have had luck w/ acupuncture and applied kinesiology.

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I tried it and it didn't do anything. There are some risks involved with botox and most doctors do not like to use it.

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Thank you for your insight. I was hoping that this could be an answer to my painful attacks. I don't vomit much at all, but feel very nausous and have severe stomach cramps/pain quite often. Is there anything that has worked for you all in the pain/cramping department? Also zofran, phenergren, or compazine don't touch my nausea. I keeps me from vomiting most of the time - but doesn't touch my nausea. Any suggestions?

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I have GP and CIP. I was given BoTox when I started throwing up bezoars. It did help me to get through this along with digestive enzymes.

Vanderbilt has some really good doctors who specialize in motility disorders.

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I was at Vandy about 2 weeks ago and I was very disappointed with the gi doctor I saw. My wife and I had to move mountains to get all the way to Vandy and the doctor doesn't seem to care at all. I heard some great things about Vandy and I had my hopes up. Dr. Shepherd is a nice guy but doesn't seem to care about me or anything that I am going through. He's giving Vandy a bad name in my book. I live in Cleveland, TN and looking for anything or one that might be able to help. Thanks!

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Kev,

Not sure how far you are from Atlanta, but I see a motility specialist at Digestive Healthcare of Georgia (@ Piedmont Hospital) named Dr. Patrick Waring. He's a world renowned Gastric Motility Specialist who teaches other GI docs about stomach motility and has even written medical journals on the subject. He's been key to my mental & physical improvements with GP over the last month. My local GI doctor had given up on me and gave me no hope at all, but Dr. Waring diagnosed me with post-viral GP and gave me hope!! He is recommending the botox for my situation and I'm willing to give anything a shot!

I highly recommed this doctor in Atlanta if it's not too far from where you live. I live about 60 miles away. The staff there are wonderful too. I can't say enough good things about his practice. You should look at their website too. They have some good diet suggestions to follow as well.

http://www.digestivehealthcare.net/services/services_diets.html

I knew I was in the right place when I went to see this doc and there were informational packets and file folders labeled "Gastroparesis" on the counters! Good luck to you!

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Thank you! I will look into him. I live about 2 1/2hours out of Atlanta. My only concern is my insurance. This doctor would be out of network for me, but I would still like to see him. Thanks for your help - I really appreciate it! - Kevin

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Maybe they can work with you on a payment plan....even if they don't take your insurance. Keep us posted! :)

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Hello iloveboxerdogs

I am a post-viral idiopathic GP.....what are your symptoms and what have you tried? Just curious as I was better but am now running out of options and have been wondering about Botox injections....

Thanks

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I was looking at his website and I would really love to see him. My insurance covers anyone in Tennessee, pretty much. Even if I had to pay out of my pocket for the first visit, my concern is if he wanted to run test. I don't think I could affod it, even with payments. I would love to find someone devoted to GP (like Dr. Waring), in Tennessee. Do you happen to know of anyone? Like you, every doctor I have seen so far has given up on me, and trying to help me. Thanks - Kevin

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@ Kev,

I'm sorry you're having such a hard time finding a specialist in Tennessee. Maybe you could call this place to see if they could recommend someone....maybe...maybe not, but it's worth a shot, right? it never hurts to ask! the only test they wanted to run was the Gastric Emptying Study. Have you had one of those yet? Maybe you could just send them your records and go for an initial visit.

@ AMO,
I sent you a friend request. I'd be more than happy to share my experience with you. I'm newly diagnosed myself and have good days and bad days. i'd be interested to swap stories to see how they compare.

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Thank you for the advice. I have had the gastric emptying test done - that is how they found that I have GP. I will give your suggestions a try. Thanks - Kevin

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I had success with botox injections to the pyloris. My smooth muscles spasm, and it really helped stop the spasms at the stomach. In about a week I am scheduled for my third one.

Bette

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Bette - Did the injections help your nausea? I can't seem to find a doctor who will do the botox injections here in Tennessee. I am desperate for some relief from my nausea and severe stomach cramps/spasms. Are the spasms you get primarily in a certain part of your stomach area? Thanks!

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Hi kev15,

For me, botox helps stop the spasms of the pyloris. I suffer more from spasms and dysmotility. I get nauseated at times, especially when my stomach distends after I eat. If I stay clear of food then I am not that sick to the stomach.

Sometimes, when the pyloris (stomach) spasms, then it initiates spasms in other areas of my gut (like the esophagus, biliary sphincter, and intestines.) And it can work vice versa as well. I found that even though the botox goes in the pyloris, the biliary pain is less some too, since it stops the snowballing effect of the spasms and pain.

I get inflamed after the botox injections and it takes over 4 weeks for me to start to feel some benefit.

Sorry it took me a bit to get back to you.

Take it easy over Thanksgiving.

Bette

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