Botox

I'm wondering about the experiences that others on here have had with botox injections. I had it injected this afternoon but really don't know what to expect from here from the time frame it takes to start seeing results, what kind of results people have got from it, etc. Any information/experiences would be greatly appreciated.

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I'm so eager to read how this goes for you! Did your doc not tell you what to expect in the next few days? Seriously? What is with these docs lately? We were just watching an episode of Dr Oz today (yes, the same guy with the dimwit "expert" who didn't know GP from pancakes.) Dr Oz was talking with people who've had bad experiences with Botox injections. These were cosmetic stories, of course, but horrifying and Aric and I paused on the channel to listen. The audience showed a lot of gasps and expressions of shock as the stories were told. Aric and I gasped and had our own expression of shock when Doc Oz exclaimed, "I didn't know Botox could KILL people?!" -_-

It's Botulism ffs, it's not Vitamin shots. It's toxic and shouldn't be used for cosmetics in the first place (in my opinion) but it DOES have medical uses, which was mentioned on the show, although no mention of GP. None zip zero. Suggestions on how to prevent bad experiences were given, and one of the things was whom to get shots from. One of the docs visiting listed the professionals who should be dispensing the shots and none of them were cosmeticians, spa managers, friends, neighbors. He listed various medical specialists. But not gastroenterologist, which pissed me off. When the GI doc suggested Botox as one of the treatments to consider--this was over a year ago--I was so surprised! Had never even though of Botox as viable medical treatment! But it is, absolutely is. If that silly connection between the stomach and gut can be open and give you some relief then do it up! But the doc should have at least given you some clues as to what will happen.

Keep us posted! Our community needs as much information on treatments as we can accumulate.

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I wish I had known about Dr. Oz talking about it just this morning because I probably would have tuned into it for that. My doctor tried to give as much information as she could but really the jist of what she told me was everyone reacts to it differently and that only time will tell how I will react to it. So this makes yet another thing that is very personal to each person that has it done for this reason. I hope that I can learn from others on this forum about it and also inform others about it.

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Hi! I had botox injection and I waited for something to happen. I never did get any improvment from it. I hope you will be one of the people that it gives relief too.
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JoAnna

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There might be a transcript or even videos on the Doc Oz site, if you're curious about it. The stories were disturbing, absolutely, and the information helpful, but again they were focusing ONLY on cosmetic Botox. Here's to it helping relieve your symptoms and not causing you any sort of ill.

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I had it May/June of last year. I was told to wait at LEAST 6 weeks to see whther it was doing anything or not. The only improvement I had was that my aspirating issues lessened somewhat. I waited a good 8 or 9 weeks before calling my doc and saying it hadn't worked.

Diana

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I had it during my redo of nissen fundoplication in Dec. I was vomiting daily for about a month and a half after the surgery and that gradually tapered off to once every week to week and a half. It's now been 5 months and my symptoms have gotten worse this month in terms of my ability to eat solid food and the amount of anything I can eat at a time without becoming quite nauseous. Difficult to say if the botox worked at all because I was recovering while it was still working but I do believe I may be worse now because it no longer is. I understand it only works about 3 or 4 months.

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I had the Botox injections in October last year. I was told it can take a while before we know if they have worked. When my doc came round 2 days later and i was still vomiting he told me they hadn;t worked. I didnt have any side effects from them, just a little uncomfortable afterwards.
Hope it works out for you
Sue xx

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My neuro doc wanted to use it on my face due to problems I am having with tics but I having agree yet, too scared!

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Be scared, Aloha. Your face is beautiful! I have not heard horror stories about Botox injections for treatment of GP/dysmotility (only stories of ineffectiveness) but I have heard so MANY horror stories about Botox injections in the face. Is there no other option to control the tic? Does it bother you all that much? I tend not to notice the small tremors and tics I get, nor the major ones I get when first falling asleep. (Aric, bless him, is the one who gets to witness those.)

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My daughter has had Botox injections with success. The first injection only covered 1/2 of the area injected. She then went back where they covered all 4 points. Her experience took about 5 days to get the full effects.

Hope this helps!

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Thank you for your post NatAdams. I appreciate knowing the time frame to maybe expect and that it helped your daughter. How would you say it changed your daugther's symptoms and/or why are you considering it successful? So far nothing has changed with me; I've been pretty much in a flare up on and off for the last couple of months so I'm just really tried, fighting dehydration (I've already got 2 liters of fluids last monday and then got another 2 liters yesterday), I totally don't have an appetite, and in a lot of pain.

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i was given botox and at first i didnt see an improvement at all- but at 2 weeks i began to notice how fluids i was taking passed through much quicker and i began to try some solids again - i was able to manage small portions without any nausea at all - its been 7 weeks since botox and i have eaten small teensy portions 4-6 times a day with a huge variety in foods - i still have domperidone 3 times a day and i have to stick to the gp diet - low fat low fibre easy digest SMALL amounts ( like 1/4 to 1/2 turkey sandwich at a time as an example ) but if i stick to that i have no nausea at all -
i have suffered from severe bloating the past few weeks though so i felt it was hindering my ability to eat - i do have very slow lower bowel transit and we arent sure if its just a lazy bowel or if its an on going damage issue - my doc suggested movicol and i have tried that and also milk of magnesia as i am so badly impacted its making me full and unable to eat much- i was also thinking it hadnt worked much as i was so full all the time but i am beginning to think its cos i was so un - used to actually eating that it takes time to get used to food again and you will be full at first -i have been much better today so i am hoping i will contine to improve on what i am able to eat-
if this botox has definately improved things enough for me ,he will do a permanent procedure which has the same effect as botox and is a long term thing- good luck and i hope it works for you too- just do everything you normally do each day and hopefully you will begin to notice food and drink digesting 'better and quicker' if this happens just go slowly and start to increase your intake as it means botox IS helping you x

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What's the 'permanent procedure' that would work like the Botox treatment, Lisa?

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My surgeon talked about Botox (temporary) or having the pyloric sphinctor cut which is basically permanent. It's the ring of muscle at the base of the stomach where the botox is injected. There are pros and cons to having that done. You could end up with a major dumping syndrome afterwards. Since it's early in the game for me, I was glad he started with the botox. I signed consent for both prior to surgery--it depended on what it looked like in there with the other procedures he was doing at the same time.

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I have been through the gambit of tests and the doctors have decided that my muscles down there work "too well" along with slow transit colon, liver disease and a few other random things. After every other medicine in the world, they put me on Reglan and I am going to get Botox in the 2nd week of June. Please keep us posted :) I have been reading the boards over and over and this is first time I have seen Botox for this problem. Thank you so much! Good Luck!

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Hi! I've had Botox four times and everytime it was an easy procedure. Just the upper GI and you don't even realize they did an injection. The first time, it was like a miracle -- within 2-3 days I was literally "normal". And, it stayed that way for almost a year. I was the best success story my physician had ever had. In fact, I began to believe my GP diagnosis was a mistake. Then, the old symptoms started again, slowly, until I was really sick and on a liquid diet again. The second time, the Botox worked for six months (took about 3 days for it to take effect). Then, the symptoms all came back, so we tried the third time -- absolutely NOTHING changed! I was so discouraged. We tried it again three weeks later, just in case my doctor didn't hit the right spots...and Nothing. Have to say I was really bummed. But, it was definitely worth the try...easy and for me, it worked really soon (when it did work). They say the effects usually last 3 to 6 months. I have no idea why I was fine for a year. I think my GP just progressed (my intestines are involved too) after the first two times. I would say, if you don't feel better after a week or two, it's not going to work

I wish you the best!

Jill

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Well Tuesday will be a week and I haven't seen any changes yet but my GI told me it's normally a gradual difference that happens over 2 or 3 weeks but I also a new pain management doctor on Friday and he said with his experience of it you can't completely count it in or out until at least 2 months after. So only time will tell I guess.

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marianne the 'permanent' procedure is to keep the pylorus permanently open as the others have suggested - it does come with some potential side effects but for me this would be preferable to the inability to eat - i am now 6 weeks post botox and i am amazed at the difference its made x

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My daughter has had botox done several times. The first two or three times were definitely the most effective. They have usually been done at the start of a major flare for her when pretty much nothing was going through. It helped with liquids for her. Subsequent ones seemed to have little to no effect unfortunately. She was told to expect things to get worse for a few days before they would get better as there is inflammation at the site of the injections - makes sense I suppose. It took 4 - 5 days for her to see any improvement. Also the effect wore off in about 3 - 4 months but by then her stomach was usually doing a bit better. She would say it is definitely worth trying.

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Hi,

I had botox 3 different times. Each time helped me. The first two times, it took over 4 to 6 weeks to feel an improvement, and it lasted 6 to 8 months. With my last one, I noticed a difference the next day! It's been five months, and I am starting to feel it wear off.

For the first two injections, some of the improvement was so gradual, for example being able to only take in a sip at a time of a liquid to being able to take a few sips to drinking a few ounces at a time. Eventually eating a tiny bit once in a while.

Keep us posted. I hope you will experience some improvement in the days to come.

Bette

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