well im 16 and have had gastro paresis for nearly a year. through everything i never had anyone my age to talk to and would like to find some one to discuss how they got through it or if anyone needs any help. its to hard to go through it alone. my symptoms are begining to reappear so my anxiety levels are through the roof! and no one, i mean NO ONE understands but the people who have been through it themselves.
so any kind of encouragment would be great but no to cheesy :D
Hey there Ms. 16! I can absolutely relate to you! I have had problems since I was a very little girl--about 4, however, my problems got really bad when I was about your age. (Almost 26 now myself!) I know how you feel. It can be lonely and embarassing. Society doesn't really deem our problem appropriate to talk about. I just want you to know that you definitely are NOT alone. If you want to ask any questions or discuss anything in particular, please feel free to shoot me a line. I'll be praying for you because I know this time of your life is particularly difficult--sick or well.
~Sarah
Hi, there. I'm so glad you found this site. It has definitely helped me to not feel so alone with all of my GI problems (GP as well as other issues). Hopefully we can do the same for you. Feel free to ask any questions you might have. It is really hard dealing with these chronic health problems (especially when you're so young!), but at least we can support each other.
Hope to hear more from you.
Kate
Hi! Welcome to the group. I'm so glad that you found us. I hate that you are having to deal with this condition at such a young age when you should be able to just be having fun.
I think you will find that there are people of all different ages on this site who have been dealing with GP from a short amount of time to years of it.
I am one of the older people although I don't think I'm ancient yet. I have found out though that for the most part it doesn't really matter what age we are, we all still can relate to situations in each others life.
I do realize as a teen that you have a struggle of figuring out how to be as normal a teen as you can while dealing with feeling so bad. GP effects all of our social lives but with a teen, your social life is centered around junk food and hanging out which doesn't work well with GP.
I think that Char or Adance might be able to give you some good advice and support on how to balance it all. They both begin having problems in there teens too. Also, another person on the site that I know can relate is FinallyWell. She was about 15 when she was diagnosed. I know that High School was a rough time for her and that she felt like she missed out on a lot and that friends didn't always understand. She is no longer a teen but her health has improved greatly and I can tell you that she is a very sweet person and easy to talk too. I know because she is my cousin and until I found this site, she was the only person I could talk to that really understood.
I am so glad that you found us though because I think that you won't feel so alone anymore. You can use us to vent when you are angry or upset. It's a great place to ask questions and share experinces. You never have to worry about someone thinking your a whining, or that your questions are stupid. Everyone is so great and no matter what the question is someone always seems to know the answer or can make some suggestions.
I think that most of us feel almost like family. I know that I talk about people on the site so much that my own family feels like they know them too.
So, in my long rambling way I am just trying to say that I hope that you will use us for information, support and friendship.
Hope to hear more from you.
Judy
Welcome to the group! I've been dealing with my condition since birth, and I'm 26 years old, so I know exactly what you're going through as well. And yes, no one truly does understand unless they've gone through it as well. But you have found an awesome community to vent to, and give encouragement as well. I'm new on here as well, and in the short time I've joined, I've found we are all here to help each other out, even if we're thousands of miles apart from one another.
It's normal to have those high anxiety levels when you're having symptoms, but remember, you're not alone. I'm not sure how close you are with your family or friends, and how much you share with certain people, but we're all here for you! I hope you do have the support with you in your family and friends as well! Stay strong, and keep your head up!
unable to post. something is wrong with site. I'm sorry.
Well I just lost everything I wrote! Oh well, so I am from California too, North of San Francisco. Do you have good doctors who have experience with Gastroparesis? If not, I see a group in San Francisco who are excellant for Motility issues.
I will look forward to hearing from as well as learning from you!
Katherine
oh my gosh i feel like i've found the answer i've been looking for! im so sick of saying "you have no idea what its like" but now i have people who know exactly what its like. thank goodness for supposrt groups. i just wish i could have found this eariler on. you dont know how encouraging all of this is! im really hoping i can learn more about this seemingly unknown illness and share my little insite. thank you all so much. you really do help a ton :]
Welcome to the group. It really is nice to be able to talk to people who have been through or are going through the same things as you, because there are so many people out there who don't understand what it's like to live with this.
I'm 22 and have had gp since I was 15, so I've just been through the whole being a teenager with gp thing. I'm happy to answer any questions or share any of my experiences with you.
I hate that you are seeing your symptoms show up again. I take it that means you were able to see some improvement for a little while?
It's hard, I know. You are in my thoughts and prayers,
Char
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