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Life Isn't Always Fair
- By jyum · New reply 11:05 am
- Journal · 7 replies
- As if I didn't have enough things going on in my life... I had a abdominal/pelvic CT on 7/19. A nurse called on 7/29 to tell me that there was a lesion on my lung and the dr ordered a Chest CT and that ...
MIRALAX RECALL
- By shamrockmom · New reply 9:44 am
- Discussion in Open discussion · 12 replies
- Just thought I would share this. Miralax Recall 2010 Improperly Fitting Bottle Caps Prompt Laxative Recall By Alan Harten on July 17, 2010 Miralax Recall 2010 Improperly Fitting Bottle Caps Prompt Laxative ...
semi-elemental tube feeds
- By Juhint · New reply 8:43 am
- Journal · 6 replies
- Oh my god, just hooked up my new formula, a semi-elemental formula, for the very first time and can't get over the fact how absolutely vile the smell is!!! I am not looking forward to burping that stuff ...
My botox endoscopy
- By farvabeans718 · New reply 8:27 am
- Journal · 6 replies
- Let me start out by saying this was the worst endoscopy experience I have ever had. The nurses were great, but other than that it sucked. When I was back in the prep area, I saw my doctor although he ...
Anxious before first iron infusion
- By Juhint · New reply 8:22 am
- Journal · 9 replies
- I am having my first round of IV iron tomorrow, and I am a bit anxious. I am getting it at my pcp's office. I went to get the prescription today, and she informed me that she will be giving me an IV iron ...
Electric Company Critical Care Program
- By shamrockmom · New reply 1:55 am
- Discussion in Open discussion · 3 replies
- I just found out and applied for the Critical Care Program thru my Electric Company here in NY (Long Island). The program is FREE. All I did was send them a letter from my doctor stating I am on a Feeding ...
"well you look good"
- By Nina372 · New reply yesterday at 10:51 pm
- Journal · 46 replies
- The video explains it all. lol I have created a facebook group for this very reason. Here is a link for it if you have facebook. Its for those of us with chronic illnesses that you cannot see so people ...
in lots of pain due to constipation
- By DGSTRICK · New reply yesterday at 10:07 pm
- Journal · 18 replies
- I am not doing well. I told my Dr if he does not do something soon I am going to die in the bathroom. I am in soo much pain all the time. It feels like I am being torn apart. I can hardly feed with my ...
Motilium on airlines?
- By carrie_rae_shamel · New reply yesterday at 9:20 pm
- Discussion in Open discussion · 3 replies
- Hey All. Next month I am travelling from the USA to Finland and I am hoping to take my Motilium with me. However, I think you are only supposed to fly with meds that have a 'script. Since I live in the ...
GJ-Tube my first one I have some questions.
- By Nina372 · New reply yesterday at 8:35 pm
- Discussion in Understanding · 19 replies
- In January I was on TPN via a Picc line. In March my docs put in a GJ-Tube. The tube is about a foot long coming from my stomach. I have two questions, 1. Do GJ-Tubes have to be changed on a regular basis ...
Antibiotic associated diarrhea
- By horsecrazygal · New reply yesterday at 7:58 pm
- Discussion in Inability to eat · 2 replies
- Hi everyone, I'm having a tough time again... I ended up in the hospital a few days ago with Severe abdominal pain, nausea, vomiting, and diarrhea. I couldn't keep liquids down at all and was getting ...
acupuncture for GP nausea and vomitting
- By vampgyrl821 · New reply yesterday at 6:15 pm
- Discussion in Alternative therapies · 6 replies
- Has anyone tried acupuncture for GP nausea and vomitting. My dr is grasping at straws no medications work. The gastric pacer hasn't changed much and I had to get my J tube pulled due to pain. I'm trying ...
Pain
- By vampgyrl821 · New reply yesterday at 6:12 pm
- Discussion in Pain issues · 5 replies
- I'm sick of being in such annoyingly strong pain all the time. Even if I just try water the pain increases. So I'm either in pain or have to be on constant IV treatments to keep hydrated. Hummm... Uhhh ...
PFD & Colonic Inertia
- By russellria · New reply yesterday at 4:11 pm
- Discussion in Open discussion · 4 replies
- Has anyone else been told that their PFD has caused colonic inertia ...
I have had the J-Tube for 1 Week, now for some questions?
- By orangesoc12 · New reply yesterday at 1:56 pm
- Journal · 9 replies
- Alright, I have had this J Tube in for a week now. Nothing really has changed. I guess my question is how long does it take to adjust to the whole thing. It seems like the pain has not gotten any better ...
When poop and puke rule your world!
- By renielou · New reply yesterday at 12:55 pm
- Journal · 29 replies
- It is very embarrassing and hard to explain as a 31 year old female without any children that I can't leave the house or socialize because I never know when it is going to hit me. It is all or nothing ...
Working on a Wonderful Life
- By tomeckom · New reply yesterday at 12:46 pm
- Journal · 3 replies
- Just gonna jump in here and start a new post. Seems like I need to let my feelings out just once more....remember it's my therapy time...tee hee. This past week, I have dealt with many ups and downs ...
Bloating - how to relieve?
- By under3feet · New reply yesterday at 10:39 am
- Journal · 8 replies
- I have SBS and have terrible bloating problems. My tummy feels tight and fat, so I don't want to eat, although I NEED to eat and get in more calories. Anyone find anything that helps? U3feet ...
Domperidone side effects
- By Neiners · New reply yesterday at 10:10 am
- Discussion in Open discussion · 6 replies
- I have been on domperidone for 7 weeks now. I feel that it has helped my digestion, but I am concerned about the side effects. For the first month or so I didnt notice any side effects; however, a few ...
Hirschsprung's and pseudo-obstruction
- By olivias-mom · New reply yesterday at 9:53 am
- Discussion in Open discussion · 6 replies
- My 6-month-old daughter has been diagnosed with Hirschsprung's Disease (long-segment) and small intestine pseudo-obstruction. She stayed in the hospital for her first 11 weeks and has now been in and ...
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The AGMD GI Motility Disorders Support Community connects patients, families, friends and caregivers for support and inspiration. The AGMD GI Motility Disorders Support Community is sponsored by the Association of Gastrointestinal Motility Disorders in partnership with Inspire.
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