Taking charge: Being a proactive patient

Discuss what it means to be a proactive patient. Discuss what you and others need to know and how to get the information you need by asking the right questions.


Swelling in legs, feet and ankles

  • By 0424 · New reply April 20, 2014
  • 3 replies
  • I hope that I am posting this in the correct spot. I am TNBC stage 2B. I have had chemo, surgery (lumpectomy), radiation. My last radiation was about 6 months ago. Oh, also had 3 nodes removed. I am having ...

Hope for TNBC and Plea for Help

  • By JohnAquilino · New reply April 19, 2014
  • 15 replies
  • There is real hope for women with metastatic Triple Negative Breast Cancer. The Good News: Dr. Joyce O’Shaunessy devised a combination of drugs for Lori Jean White, a patient she is treating at Baylor ...

Speak Up for Compassionate Use in North Carolina !

  • By phil9279 · Posted April 16, 2014
  • 0 replies
  • A News agency in NC wants to interview a Stage IV Pt. denied compassionate use, or struggling to get it , from No. Carolina. e-mail csiler@goldwaterinstitute.org. Tell Your Story - Save Lives ! just like ...

Sec. Sebelius Stepping Down - Take Your FDA With You !

  • By phil9279 · New reply April 15, 2014
  • 4 replies
  • This is why we Stage IV Activists want her FDA to go : http://www.wcvb.com/health/Dying-patient s-denied-drugs/25344380?absolute=true Support the Right To Try Bill - overhaul the so-called " Compassionate ...

Dirty Dozen of Endrocrine Disrupters Week

  • By BentonCity · New reply April 9, 2014
  • 8 replies
  • The Environmental Working Group has posted various food, beauty and other ingredients from time to time shown to cause cancer and other disruptive diseases. They're taking this next week to list major ...

Any Stage IV Activists in Missouri ?

  • By phil9279 · New reply April 4, 2014
  • 10 replies
  • We at stageivsurvivor.webs.com are testifying in support of the " Right To Try " Act . This legislative act is designed to improve the so-called " Compassionate Use " law . This law is not very compassionate ...

"Food Fight!"

  • By hinsopa · New reply April 1, 2014
  • 1 reply
  • http://canceremotions.wordpress.com ...

Ixempra and Constipation

  • By gkrebs · New reply March 29, 2014
  • 1 reply
  • After reading about all the people who have experienced constipation while in Ixempra just wanted to share what has helped me is taking a stool softener at bedtime. Have been doing this for several weeks ...

breast cancer linked to colon cancer?

  • By blast15 · New reply March 25, 2014
  • 1 reply
  • Hello ladies, I just wanted to share something I read on the internet. This article said that women with breast cancer has an elevated risk of colon cancer! What! Especially if your cancer is HER+. It ...

FREE 21 Day Meditation Challenge with Arianna Huffington

  • By StickiVicki · Posted March 20, 2014
  • 0 replies
  • I posted a short time about a Deepak Chopra / Oprah Winfrey meditation challenge. This came to my notice today and some of you might be interested in this - a free 21-Day Meditation Challenge with Arianna ...

brca 1 and TNBC early stages, I or ii

  • By choirchic · New reply March 20, 2014
  • 1 reply
  • I am still in limbo. Mri inconclusive, but seems to be not a met of the scapula. Trying to find any in my boat. That started stage I or ii, brca1 TNBC& what treatment did you have, how did you respond ...

Graviola Natures Chemotherapy

  • By empoweryourself-for- · New reply March 17, 2014
  • 15 replies
  • I am actively looking for people who have used or are considering using Graviola as a natural form of Chemotherapy. My Mother was diagnosed with cancer (stage 3) and has been only using alternative health ...

Stage 4 Ned-Pet Scan denied

  • By Mmarg · New reply March 15, 2014
  • 22 replies
  • I just received word my 6 month pet scan has been denied. I have been stage 4 Ned for the past 2 1/2 yrs and am surprised at this denial. An oncology auditor was hired by my insurance company this year ...

essential oils and vitamins.

  • By jilly29 · New reply March 13, 2014
  • 5 replies
  • I am hoping to get some help. My mom was just diagnosed with stage 4 breast cancer, her first appointment is on Monday with her original oncologist. She was first diagnosed with her2 positive so I'm not ...

Faslodex scar tissue

  • By Reiko-San · New reply March 13, 2014
  • 17 replies
  • Hi there, I've been on faslodex for 5 years, yay! I was wondering if anyone else out there has had the same success? And if so what type of side effects are you having? I am now experiencing migraines ...

best cancer doctors in nc

  • By jilly29 · New reply March 13, 2014
  • 23 replies
  • I really pray that I won't need this advice but in fear of a real possibility my mom's cancer has returned, I wanted to get some recommendations on doctors. She is a breast cancer survivor that has been ...

Colorado Residents Unable To Get Comp Use ? We Want to Hear About it

  • By phil9279 · New reply March 11, 2014
  • 1 reply
  • If you are a Colorado resident and have struggled to get access to life-saving drugs , there may be an opportunity to tell your story to the Legislature. Or the story of a family mbr. who couldn't get ...

Komen using METAvivor's elephant imagery

  • By StickiVicki · New reply February 27, 2014
  • 13 replies
  • This is an ADVOCACY matter which effects all of us with Metastatic Breast Cancer. In 2012 METAvivor started a campaign called 'The Elephant in the Pink Room' to help raise awareness in the wider breast ...

Anyone having thyroid problems after breast cancer

  • By Juanita2993 · New reply February 24, 2014
  • 13 replies
  • My doctor told me. I have a goiter and wants me to go see an Endo spec. Anyone else having thyroid problems after breast cancer? I'm always tired, forgetful, weight gain, hair loss, headaches, depression ...

Not resident in USA

  • By Fleur21 · New reply February 15, 2014
  • 9 replies
  • Does anyone know if there are clinical trials/treatments available to those resident outside of USA? I live in South Africa, have been a missionary here all my life. Recently found out I have Stage IV ...

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