Taking charge: Being a proactive patient

Discuss what it means to be a proactive patient. Discuss what you and others need to know and how to get the information you need by asking the right questions.

Discussions

Restaurant of the Month Club

• By LauraW43 · New reply 4:44 pm
• 5 replies
• So, STAGE IV LIFE Metastatic Breast Cancer Foundation (sometimes known as S4L MBCF - depending on how lazy I am) is finding different restaurants who are willing to donate a portion of diners' bills to ...

Bone mets meds

• By LauraW43 · New reply June 17, 2013
• 53 replies
• Can you please list all the meds you know that are specifically to keep your bones strong after being diagnosed with bone mets? Also, side effects, such as ONJ. Just bullet points are fine - I am preparing ...

More awareness presentation

• By LauraW43 · New reply June 11, 2013
• 7 replies
• Anyone sick of me yet? Don't answer that - I cry easily :) I am wondering if there are any men, or very young women, or Asian women, or very old(ish) women who would like to have their picture included ...

Need to start tribute for October.

• By LauraW43 · New reply June 9, 2013
• 12 replies
• Hi all, Can you all please help me gather tribute info? Last year's format worked so well. Theresa, do you have everyone's info at your IMBCAG fb? And, Vicki? You were so helpful last year. Please, if ...

Metastic Metaplastic Carcinoma - Triple Negative

• By etq · New reply June 8, 2013
• 7 replies
• I am just curious if there are any other women out there who have been diagnosed with this type of breast cancer. I've been fighting breast cancer for 11 years. This is genetic - a mutation of the BRCA ...

Taking Statins? Strains, Sprains, or Fatigue? Check your dosage

• By BentonCity · New reply June 8, 2013
• 1 reply
• This just came thru Medscape (which you may need to be registered with so the message is pasted below). I'm on a low dose but was thinking if some of you are in the high range mentioned, this could be ...

Awareness presentation

• By LauraW43 · New reply June 4, 2013
• 1 reply
• Hi ladies in the minority group :) I am making a power point presentation for my fundraiser gathering in October. Last year, I found out that black women had hi incidences of misdiagnosis because of fibroadenomas ...

Mini Triathalon

• By HighFlyer · New reply May 25, 2013
• 4 replies
• Well... okay.... I'm diving in (no pun intended)... Just decided to sign up for the mini-triathalon here in my area. I'm learning how to swim (sort of)... well; I'm learning how to stay afloat anyways ...

17cm tumor

• By beachgirl072 · New reply May 21, 2013
• 3 replies
• I just wanted to share. I am triple negative, brca1+, idc, my tumor was 5cm. I just got my moms records since her last in 2002. My moms tumor was 17cm x 17cm, she was also invasive ductal carcinoma, Not ...

Ruby's fundraising dinner

• By LauraW43 · New reply May 12, 2013
• 8 replies
• Held today. Mostly my family :) But, my neighbor showed up, a friend of my middle daughter's brought her family. Some of their friends arrived by accident and got sucked in, ran into a lady whose daughter ...

First Donation!

• By LauraW43 · New reply May 7, 2013
• 6 replies
• Well, I have received a very generous offer from a friend of my mother's, to purchase a laptop computer for me, so I can use it for things like power points and such. This person is buying it for me personally ...

extreme low white blood count

• By eleener · New reply May 6, 2013
• 13 replies
• My most recent bloodwork read "extreme" low white blood count, yet oncologist made no mention of it....should I be concerned. What happens when you white blood count is low ...

TSHIRT

• By LauraW43 · New reply May 4, 2013
• 10 replies
• Still need an advocacy topic :) Here is a tshirt and these words will be crossed off and then I need a word not crossed off or a question mark at the end. Write a yes or no if it should be crossed off ...

Still working on my fundraiser

• By LauraW43 · New reply May 2, 2013
• 12 replies
• The hotel I'm hopefully hosting my fundraiser at has offered a two night stay and one morning brunch as a door prize! 1- I wish I could get it, but I'm not legally allowed :( 2- Hopefully, this will be ...

double masectomy

• By zoomdots · New reply April 27, 2013
• 5 replies
• i am undergoing a double masectomy in may this is creating alot of mixed emotions am i prepared to stop taking care of the feelings of the doctors, the support persons involved these changes and the unknown ...

Facebook

• By LauraW43 · New reply April 20, 2013
• 10 replies
• I'm still hoping for an Advocacy topic button. Anyway, I started my facebook page, but I don't even know what I'm doing. Apparently, I actually have two, but can't figure out how to delete the one, because ...

IMBCA ADVOCACY QUILT-HELP! NEED MEN'S STORIES!

• By TPALOMARES (Inactive) · New reply April 19, 2013
• 16 replies
• As some of you may be aware that StickiVicki started a Facebook group page several months ago called IMBCA-Inspired Metastatic Breast Cancer Advocacy. This group was formed outside of Inspire so that ...

Natural Remedies

• By iamlucytwo · New reply April 18, 2013
• 12 replies
• Does anyone have experience with natural cures for cancer? I am currently researching this subject but am quite overwhelmed by all the information out there. If you have any knowledge on NATURAL ways ...

Men Get Breast Cancer Too

• By irishmanDJ · New reply April 17, 2013
• 13 replies
• In October 0f 2011 I was told I had Breast Cancer. They removed my right breast and then wanted to go back in and do more. After consulting with doctors I determined that their treatments where out of ...

PET Scan v. Tumor Markers

• By Spivey04 · New reply April 13, 2013
• 5 replies
• I have had 3 PET scans since finishing chemo last August; the results vary from stable to essentially negative to mild progression; oncologist wants to switch to Afinitor (from Anastrozole). He loves ...

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