Hi, everyone. I posted recently that I was a TNBC patient with mets to my bones, spleen, lung, and pleural space. I was started on cisplatin and etoposide. I recieved one and a half doses of the cisplatin and two rounds of etoposide. I had trouble with all the fluid they had to give me with the cisplatin.
I saw my oncologist on Monday, before I was supposed to receive the second half of my cisplatin dose (he was dividing it over two weeks) and showed him a rash that has developed on my right flank. He thinks the cancer has invaded my lymphatic system and the rash is skin mets. They did a skin biopsy and will have the results on Monday.
I have also had problems with pleural effusions since January when they drained 400cc from my right pleural space. At the beginning of April they removed a little over a liter of fluid from each side and then this week removed 1200-1400cc from each side. The fluid in April tested positive for malignancy.
My breathing is better since they removed the fluid this week, but my doc put me on O2 4 liters around the clock. He says that the development of the skin mets and my increased shortness of breath (which is still there, but a lot less now than before they removed the fluid) means that the chemo I was on was not working.
I will see him again on Monday. He will have the results of the skin biopsy and of a chest CT scan they did this week.
He mentioned hospice twice during this week's visit. I told him I still felt too strong to just give up. I know they are running out of things to try. I've had ACT, Abraxane, Avastin, Xeloda, Navelbine, Cisplatin, and Etoposide. I called his nurse yesterday during a panic attack and she said he had written about trying a drug called Pemetrexed in his notes. I have never heard about this drug and there is not much info. about it and breast cancer on the Internet.
So, I am just looking for any experience or advice anyone has to give. I am so sad and scared and just don't feel ready to give up hope yet.