Metastatic Breast Cancer Awareness Day

• By pattikaye
• Posted August 3, 2008 at 4:33 am

My letter is all set to go to the Mayor of Poughkeepsie, NY tomorrow. I think it is a great idea!! Maybe others will see this and write to their Mayor or even another representative (State Senator, Governor, U.S. Senator, etc). The more that know, the better. I hope we get the recognition in all 50 states and the news is abuzz with it!!! Patti

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• By EHM
• Posted August 3, 2008 at 9:38 am

Yeah!!! those proclamatioins are a great beginning! Once signed, sealed and delivered, copies can be posted in cancer centers, public buildings ( banks, postoffice, schools...) and sent to all support organizations as a way of urging them to provide programs for those of us with mets. and of great value- getting something in the newspaper! Is there a way for the mayor of Poughkeepsie to hold a press conference? maybe have a photo-op when he/she hands you the proclamation? If you contact getinvolved.mbcnet@gmail.com, you can ask to be hooked up with others in your area who can possibly go with you to pick up the proclamation.... and you can all wear MBC t-shirt - free of change from the Metastatic Breast Cancer Network. Maybe ... can you write a short piece for your local paper on mbc? or a letter to the editor? Once something gets published in any newspaper, there is a chance it will be picked up by google news and then sent out to all who subscribe to bc news thru google and that is a wide audiece. We are on our way to changing the face of metastatic breast cancer... one step at a time!! This is such a vitsl mission for us all!

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• By peggyr
• Posted August 10, 2008 at 6:11 pm

I've got Orlando FL covered!! I have my dr's office support and probably the local chapter of Amer. Cancer Society. It's one step in a journey.

It occurs to me that we, the Met Br Ca community, is like the general breast cancer community was 30-40 years ago. Grass roots then grew into advocacy groups, into changes in society's perception,into research $$$, into longer lives for all patients and, a new community: Us!!!

I have been in my second experience with stage 4 (first was n 1992 with 10 years of remission) for the past 5 years but never have seen myself as a part of a community until now. I have been working, and active at church, and with friends.

I finally just recently realized I know no one like me! What a shock!

But now I know you...

I am so happy to a part of this website.

peggyr

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• By LMR
• Posted August 10, 2008 at 7:21 pm

Great work, Peggy. I'll keep my fingers crossed for Orlando and maybe all of Florida!

I know just what you mean about suddenly realizing that in a room of 100 people you are probably the only with with metastatic breast cancer. Not a great lottery to have won but I once heard someone say that it's not the condition you are given, it's what you do with it that counts and it looks like lots of us on this website are being proactive, getting the word out and helping others come out of the shadows. Three cheers for us all!

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• By suzct
• Posted September 4, 2008 at 11:16 pm

Hi all,
Good news is that we have lots of cities and states on Board with proclamations for MBCAD. Good things are starting to happen from all the focus. I hope October will be a much more tolerable month for those of us with metastatic disease knowing we do have our own day and hopefully some media coverage announcing it.

Suzanne

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