I am so bummed out.
Today was my 11th week of Taxol (108 mg) + Herceptin (144mg). I get Zometta once a month. I thought that we were only doing 12 weeks of Taxol so I was excited about being almost finished.
Next week I will have a Pet Scan, Bone Scan, Brain MRI and MuggaScan. My doctor stopped by and said that if the tests show good results she wants to keep me on the Taxol! (She didn't say for how long -- indefinitely?!) She says that she doesn't want to stop the "momentum"...
I want to see good test results too, but I'm not happy about staying on the taxol. My hands and feet tingle all the time and sometimes sting. My nose bleeds. I'm always tired. Last week I had a urinary infection and I've had a dry cough for about 4 weeks that won't go away. I'm very tired all the time. I feel like my immune system is compromised by the Taxol and would like to feel somewhat good again. (oh, and I would like to grow hair on my head again).
Has anyone else here had experience with long term Taxol use? Is it worth it? Thank you. Beth