I ended up not getting to start the BEZ235 clinical trial. It was a safety issue for me since one of my clotting factors has been elevated for a few weeks. So moving on, I am going to start Halaven Thursday. Have any of you guys started this medicine since it has been approved or known anyone who has used it? It is an infusion given days 1 & 8 and off week 3 of a 21 day cycle. It says it is ran over 2-5 min, but I asked my nurse and she said about 20 min. S/E appear to be typical. I am also stopping Zometa and starting Xgeva. It is a shot given monthly. I started back on my Arimedex a couple of nights ago. I am Her2 +, but I don't think at this point I will be getting back on Herceptain or Tykerb for now. Not sure why, but I will be asking. I want one of them. They are also checking on the TDM-1 trial in San Antonio for me. I have been working so hard for this original trial and have been off chemo for about 2 months and boy can I tell everything has really gone down hill body wise. Weight loss, pain, fatigue. I have even had to see a pain mgmt doctor during all of this. It has been one huge roller coaster.
Any info you know is much appreciated