Electric 'Shock' Feeling in Arms & Legs

Hi,

Just a quick question before we go to the nerve specialist tomorrow. I hope I can get some examples from you ladies that I can share to convince the doctors that they need to check this out.

My mother is experiencing electric shocks in her legs and arms. It is like her arms and legs are numb all the time. It happens sometimes, irregularly and unpredictable. I really hope it is nothing serious.

Does one of you ladies have/had such an experience????? It would really comfort us if somebody could say it is not that bad. I hope it is a side-effect of her medication (tamoxifen and zometa)?????

thnx!!

Mom Daughter

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Cannot say I've experience in that department XYZin...but am sure others will post soon w/info. that may help you figure out this dilemma....Maybe nerve damage due to meds.??? Dunno.

Good luck tomorrow in getting the dr's. to listen ...and you really deserve a big (((Huggg)))...I want YOU to FEEL this.....I know you love your mom so much and you are doing everything you can.

Remember to b-r-e-a-t-h-e for yourself too.
Tara

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i have what is called neuropathy in my fingers and
feet, the printed material that received at the beginning
of my treatment said it was a possible side effect of
my drugs (avastin and abraxane) it gives a pins and
needles feeling, with occasional sharper twinges in
my feet, my significant other underwent colon cancer
treatment a few years ago and had similar effects and with totally different drugs.

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I have been calling my oncologist over the past 3 weeks about this subject. I have been experiencing severe pain in my right leg on and off. It is spuratic, mostly at night, but today pretty much kept me in bed. They have done a cat scan and a mri, to fine "nothing" The pain is pretty much imbearable. When I saw your first post, I have been following your blog cause I feel like i'm going crazy. I am going to give you my email directly if you would like to talk its a064510@allstate.com. I now call them my leg episodes, but so far only in my right leg, and when they come on I pop my pain medicine and my break through pain medicine and cry an cry until they go away, this has just started like I said over the past 3 weeks and it is scarying the hell out of me. If you would like to talk please email me. God Bless

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I have something like this!!! It is a very weird thing. When I bend my neck down, I get this feeling from above my knee caps to my toes and sometimes in my arms... It is worse at night. It's like a electric shock and doesn't last long, but it's there. It is like a tingling feeling - weird.

I told my ONC and he wasn't concern, but I am. I plan on seeing a neurologist to have it check out.

If I find out anything I will be sure to post. Good luck and let us know how your mom makes out.

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Went to the neurologist today, and guess what......it is nothing to worry about....what my mother is feeling are side-effects of radiation therapy she had 4-5 months earlier.....that is what he says at least........the tinteling feeling can last for 6 weeks, but should eventually fade/lessen.....however my mother still has the symptoms after 2 months.

Let me first try to describe what my mother feels. Like jojobeans, she has a tinteling feeling like electric shocks going from her thighs to her feet and from her shoulders to her hands. It happens almost continuously, no matter it is day or night (thereby driving my mother crazy), and not caused by a specific movement. We have tried painkillers, but it does not help with the electric shocks. On a sidenote (but I think it is related), my mother has constantly cold feet.

Megypsy5 - I looked up 'neuropathy' and I think that this describes what my mother is feeling!! Only yours were caused by meds, my mothers probably (hopefully) by radiation. Some initial findings on the term:

'Peripheral neuropathy' refers to damage to the peripheral nervous system, which may be caused either by diseases of the nerve or from the side-effects of systemic illness. Frequently the cause of a neuropathy cannot be identified and it is designated idiopathic (unknown cause).
- Neuropathy may be associated with varying combinations of weakness, autonomic changes and sensory changes.....
-Symptoms depend on the type of nerves affected; motor, sensory, autonomic, and where the nerves are located in the body.....
-Damage to the sensory nerve can produce tingling, numbness, and pain.....sensation of wearing an invisible "glove" or "sock", burning, freezing, or electric-like, extreme sensitivity to touch.

Stef67: I am so sorry to hear that you are having so much pain. What painkillers are you taking? Our onc says that my mother has to maintain a stable medication bloodlevel (so in our case, every 12 hour an Oxycontin pill).
Your profile did not say where you have bone mets. Is this (also) in the vertebrae (spinal bones)? If so, did you had radiation the past half year on your spinal bone? (what level?). Our neurologist said that for example if you had radiation on your neck bones, then you could experience the tinteling feeling after more than 2 months in your arms and legs. As you have it on the right leg, it could also be lower spinal bone. Please have this checked with the onc/neurologist. Did the MRI scan did not show any signs of cancer pressing on the nerves?

Jojobeans: Does the tinteling only happen when you bend your neck down? It could be explained if you had radiation done there (or in that area). Please update us if you had the appointment with the neurologist!

~I wish you all the best~
Mom daughter

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Thanks XYZ - I did have radiation in July on my neck. That could explain it. It mostly always happens when I bend my neck down. It is weird that it started to happen about 2 months after the radiation. I haven't made the appointment with the neurologist yet - I keep putting it off as I miss so much time from work because of DR's appts - I know, what is wrong with me! I will make the appt tomorrow - thank you!!!

And you are right - pain killers do nothing to touch this sensation.

As far as neuropathy - what kind of doctor is the best to see - an neurologist or a orthopedic? I have conflicting reports from friends and drs...

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XYZin - What did your mom "feel" about this? It not being anything to worry about? Did she feel relieved? Did the doctor put her mind at ease a bit?
I pray so.

Tara

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Jojobeans, did you make the appointment?! Sorry to chase you, but you should make that appointment =D

And I think that a neurologist would be the best person for the electric shocks (as it is most likely to be caused by irritation/damage to the sensory neurons). I thought orthopedics are for bone/joint/muscle problems, but we have never been to a orthopedic, so I would not know for sure ofcourse.

And Tara,
My mother is sadly not even slightly more positive by the news from the neurologist and my own research. Her explanation: "if it was a side-effect caused by radiation, then the shocks should be slowly diminishing. Mine are increasing, first I only had it in my legs, now also in my arms........"

No reasoning with my mother, so I just hear her out, explain again what the doctor said and then hear her out again..... never give up hope I say.

Thanks for all your support, I hope that this thread helps a lot of you to place some of the symptoms you have!

MomDaughter

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Nerve pain is bad and does not respond to regular narcotic pain medicine. Has she tried neuontin or lyrica? She may get some pain relief. I have found that physical therapy has worked for me. It takes a lot of work with slow stretching and heat but it can get better. I also think that the shocking and shooting nerve pain can be a sign of the nerve reviving and coming back that is why it happens long after treatment is over. Hope her symptoms clear and she gets some relief.

Melba

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Melba! THANK YOU! thank you so much!

We went to the neurologist for meds against the numbness, tingling, electrick shocking feeling, just to hear him bluntly say there are none.

I will definitely consult with our onc about the possibilities of Neurontin or Lyrica!
(*Although Lyrica is FDA approved only for nerve pain as a result of Diabetes or Shingles, or for Fibromyalgia or Partial onset seizures.)

Have not looked into Neurontin, but "Lyrica capsules are believed to work within your body to calm the damaged or over-excited nerves that cause pain......by reducing the number of "extra" electrical signals that are sent out from damaged or over-excited nerves". (www.lyrica.com)

Did you had experience with these meds?

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Thank you so much for your reply, I take oxycontin every eight to ten hours. I had radiation in lower back in 2008. mets to the spine, femur,pelvis,ribs. I now have an appt with a pain management doctor. They talked about spinal blocks(?) I will keep you posted....

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xyz - I did make the apptmt... thanks for the pushing ;0) I need it... I go right after Christmas...

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Hi,

I have an appointment with the onc this Tuesday.
Just to prepare myself when I go the appointment, does anybody have experience with Neurontin and Lyrica?

Thanks!

MomDaughter

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i'm sorry your mom is having this unfortunate side-effect.
doctors can guess at how long this kind of thing will take to get better, but they are only guesses. each of us is different.
i have had nerve damage both times i had radiation. the first time, it went away quickly (less than 4 months), but the second time it hung around for a long time, and i still have issues with it on occasion now 2 years later. it's annoying, but i can live with it.
i hope her symptoms improve soon.

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CSF, thanks for your support. Have you tried meds?
Painkillers are not working for my mother, but our doctor (finally) prescribed Neurontin!! My mother has not tried it yet, but hopefully it will reduce the 24/7 electrocution feeling through her body.

Thumbs crossed!

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I haver tried neurotin and lyrica for the pain and tingling sensations in my arms and hands. Neurotin did not work for me at all, but lyrica is definitely helping.

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Shirl5,

Thanks for you reply. Could you also tell how long it took for the meds to work. Our doctor said it could take a few days to a few weeks! I just hope the meds will work (will be the BEST christmas present ever!!

Happy Holidays to you Ladies!!

Mom daughter

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Hi
I take Lyrica and have been taking it for years due to nerve damage. It really does help a lot. Neurotin gave me terrible side effects. I hope your mother gets some relief. I think nerve pain is the worse kind of pain.
My prayers go out to you and your family.

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Hi-
I don't want to alarm you, but look up the definition for Lhermitte's Sign. I had these same feelings and was diagnosed with Multiple Sclerosis. Definitely go follow it up with a Neurologist and MRI- not just of the brain but of the neck and spine too.

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my above post was directed at JoJoBeans-

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