greensmile's journal

pilots

greensmile
  • By greensmile · Posted October 12, 2008
  • 0 replies
  • i had a funny experience just a few days ago.when i'm out and about people who know me are aware of chair,vent,and voice amp system.those who aren't familiar ask the craziest questions.the one that beat ...

elevator

greensmile
  • By greensmile · Posted September 15, 2008
  • 2 replies
  • happy elevator,we have our private elevator and it's amazing.it's still in the process of the finishing touches but it will work out beautifully. now i can go out with-out a second thought,no strain,no ...

believing

greensmile
  • By greensmile · Posted August 1, 2008
  • 15 replies
  • hi to all, i was wondering if any one out there has had to deal with a family member who stubbornly says your problem is only psychological.i do,my eldest sister says this and has convinced her children ...

changes and news

greensmile
  • By greensmile · Posted July 23, 2008
  • 2 replies
  • hi to all :) well....it's been a while-naughty me...;) we'll be beginning "project elevator" in a few weeks which will make life much easier,big time and will facilitate getting out with greater ease,and ...

pics

greensmile
  • By greensmile · Posted May 13, 2008
  • 2 replies
  • well ,,hello to all, i've finally put a pic of me up together with my grandsmile.he loves sitting on my lap and doing bagels(doughnuts) and always holds on to my hoses.it's funny because he thinks that ...

strange beats

greensmile
  • By greensmile · Posted April 12, 2008
  • 2 replies
  • hi every one, it has been discovered that have periventricular beats or contractions.the docs say i have nothing to worry about,but i am concerned.does any one out their know about this?if so please fill ...

breath

greensmile
  • By greensmile · Posted March 21, 2008
  • 8 replies
  • hello and happy purim and happy easter.my vent was upgraded to the top with total back-up in every aspect.now i'm on the vent just under 24 hrs per day as compared to 20 up till now.still working but ...

neck pain

greensmile
  • By greensmile · Posted February 6, 2008
  • 3 replies
  • hello to all, i have been suffering with severe neck pain and numbness in my face,dizziness and sometimes nausea.i was wondering if anyone else has experienced similar to this and what might be suggested ...

art

greensmile
  • By greensmile · Posted January 28, 2008
  • 4 replies
  • as you all know i am an artist but now unable to draw.i am wondering if ya'll have any suggestions for programs on computer that can be used for fine arts with head mouse accessing.i realy miss drawing ...

head mouse

greensmile
  • By greensmile · Posted December 9, 2007
  • 2 replies
  • hi again it's me the green smile :) � i forgot one thing... i use a head mouse"nav-point" which is great.i recommend it to all those for whom it is applicable.i know that every program on the computer ...

general

greensmile
  • By greensmile · Posted December 9, 2007
  • 2 replies
  • well here we are and it's hanukah sooo..... happy hanuka and seasons greetings to one and all :). i have lost the ability to write by hand so now i'll begin using a program called "easy keys" is anyone ...

breath

greensmile
  • By greensmile · Posted October 16, 2007
  • 0 replies
  • howdy to all, well things are in general running well,but my respiratory levels are now at somewhere between 30-40 % capability,sooo i'll be having my vent settings reset to increase my breathing.hmmm,that ...

keeping up hope

greensmile
  • By greensmile · Posted October 3, 2007
  • 0 replies
  • well here we are....it's the top of the holiday season,new year,the day of atonement and the succos or feast of tabernacles,and now coming into simchas torah.this last holiday is basically the joy of ...

vent and chair

greensmile
  • By greensmile · Posted September 10, 2007
  • 2 replies
  • hi to all' well i'm glad to say thatmy power chair is now set up so that my vent works like adream on the chair and now i'm able to get out more often and with out worrying about breathing problems.up ...

gastro-doc

greensmile
  • By greensmile · Posted July 12, 2007
  • 0 replies
  • well i'm glad to say there are no problems with my whole digestive system,all is well :).so the anemia is a result of insufficient nourishment because of dysphagia and a inability to chew properly.sooo ...

historical winds

greensmile
  • By greensmile · Posted June 30, 2007
  • 0 replies
  • hi proscilla, yes the wind instruments you mentioned are definitely in this category.your' brother sounds quite talented.oh thank you for the welcome in your comment,and you're right,as i did express ...

eyes

greensmile
  • By greensmile · Posted June 28, 2007
  • 0 replies
  • hello there, well things are as usual except for the fact that the docs at rehab checked my eyes and found out that my eye muscles are also now affected .i can't move them upwards any more very well or ...

vent

greensmile
  • By greensmile · Posted June 22, 2007
  • 0 replies
  • well hi to all :) i hope to be getting the new vent with in a couple days to a week and a half.it has a ten hour internal battery and will enable me to get out for longer then two to three hours.i'll ...

seizures

greensmile
  • By greensmile · Posted May 25, 2007
  • 0 replies
  • hi to all, i am wondering if anyone out there has spinal myoclonic seizures.i have them about 40-50 times a day and during the night.it wrecks my sleep and oh boy ,could i use a good nights sleep w\o ...

let's make new friends

greensmile
  • By greensmile · Posted May 22, 2007
  • 0 replies
  • hello out there, t'is me the little greensmile again. i was wondering if their are any other people with a.l.s. who would like to get in touch and just be friends. sometimes it gets a bit too quiet around ...

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