ehlers-danlos/cranial instability/ multiple chemical sensitivity

I have been a member of EDNF since 2006, my dtg who is now 18 has a severe case of hypermobile ehlers, cranial instability/chiari that was operated on 2007 by Dr Bolognese, severe POTS, and now chemical sensitive which means she swells and needs epi when exposed to smells or liquids that she has become reactive to like alcohol wipes, perfumes, cooking fumes etc.
I am learning to use the Inspire message board, but am looking for others with the above combo
Linda Simmons in Florida

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