Last Friday i had an EMG test scheduled. I announced some apprehension and asked if an anxiety medication would effect the outcome of the test. The nurse told me no but wanted to know what happened. I told her i had excruciating pain the last time I had the test done but that it had been 10+yrs ago. I didnt tell her but its one reason I have avoided neurologists like the plague ever since(despite many neuro symptoms). She told me that I shouldnt worry but it shouldnt be any worse than using my TENS machine. OK, fine, Ativan down hatch, lets roll.
The first part was fine she attached electrodes/pads to my ankle and leg and it wasnt anything to write home about. She then moved them up my leg and each proceeding current got progressively more painful until I had to tell her to stop. I asked her how many more increases we had to go and she said we were barely half-way there!(that spot) guuulp! She told me there was no sense to continue as we had several more spots to go. I told her I was sorry. She said dont worry that many patients who have pain cannot finish the test, so I felt a little better.
Enter the doctor. He gets to poking me w/ some needles and while it was uncomfortable, it was like a massage compared to what the previous currents were doing to me. The doctor told me I did well( I did make beautiful music w/ my legs!)
I am not going to cover all the testing(also incl. MRI/bloodwork) + consult as it is too long and complicated and I need the records in front of me to help explain/ask questions. I plan to disect this bit by bit (10yrs procrastination should be long eneough) and the first part I need help with is this.
I am CONFUSED. End result was the doctor told me I didnt have neuropathy or any neurosarcoidosis. If this is true what is the cause for the torture chamber-like pain inflicted on me during a test that most say is a breeze. I deal w/ pain 24/7/365. I have CTD and sarcoidosis. I am no wuss. What gives. Anyone had problems w/ these tests? What was the outcome or diagnosis?
How can the doctor determine there are no neuro problems just by checking one leg?
How can all my symptoms be attributed to anxiety and bad joints? Numbness in hand and foot, cold extremities, urological difficulties(physically fine after a very invasive and thorough work up, urologist suggested neuro involvement due to abnormal testing such as flow rate, etc), tachycardia(again no physcial reason found after echocardiogram), massive unrelieved headaches(taken just about every OTC and vicodin), fluttering/fast twitching muscles(will NOT stop until they want to), uncontrollable jerking of entire body(not often but incredibly disturbing), cognitive dysfunction(dumber by the day it seems), panic attacks, overwhelmed by stimulation that formerly did not bother me(music, tv, traffic, multiple stimuli), I could go on and on. I am worried.
Any replies would be most welcomed by my sarcky family or my newfound CTD family. Thanks