I was diagnosed in March 2008 with a colp. I met with a Gyn/Oncologist and he told me that he thought it was very early. He scheduled a cone biopsy for April 30th. I had a CT scan and the regular pre-op tests. I called his office and (only after I insisted) got a call back from a nurse who said my tests were "normal" on my voicemail. I took that to mean, that the tumor was too small and didn't show up.
I went for a 2nd opinion last week. She reviewed my test results and was troubled that my first doctor didn't call me to discuss them. She said a 1.5 cm x 1.5 cm tumor showed up on the CT. She said she'd stage it as State 1b1. She recommended a radical hysterectomy or a radical trachlectomy. (I knew both of these were possibilities, but I was clinging to the hope that mine was very very small and could be treated more conservatively). She told me that I'd have to leave the state to find a surgeon qualified to do a trachlectomy, and that it was a higher risk surgery and had a higher risk of reoccurrence.
I'm 30 years old and I have no kids, though I want to have my own. I'm devastated by this. Not only am I having a hard time dealing with the consequence of this treatment, but I'm very worried about side-effects. Specifically, I'm worried about the removal of my lymph nodes and the tissue (not sure of the name) that sometimes causes bladder dysfunction. She said both are not common, but I figure if I was unlucky enough to have cancer go undiagnosed then I'm certainly not immune to these side-effects.
I'm trying to come to grips with all of this. Quite frankly I'm concerned about scarring (my skin doesn't scar well). My family said that those things are not important....only living. I agree (and I'm certainly thinking about long-term survival as well), but I'm trying to evaluate how much of my life and body will be altered forever.
Any advice you could give would be very much appreciated. Also, this group has been a God-send to me. I've learned so much, and feel that I'm not alone BECAUSE of you all.
Edited April 15, 2008 at 6:50 pm