Undiagnosed medical problems support groups

Undiagnosed medical problems

Physicians will sometimes have to say that a person has an "undiagnosed rare condition" or an "undiagnosed genetic condition" when they are unable to find a diagnosis for certain characteristics or symptoms. In fact, finding an underlying diagnosis for many conditions can be a very long and frustrating experience. A diagnosis can take as long as five years, and occasionally may never happen, especially with rare conditions.

National Human Genome Research Institute