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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Rare diseases support groups
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Show all rare diseases groups
38 groups
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Amyloidosis
2 groups
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Appendix (Appendiceal) cancer
9 groups
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Autoimmune lymphoproliferative syndrome (ALPS)
6 groups
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Congenital adrenal hyperplasia (CAH)
3 groups
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Fabry disease
12 groups
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Familial adenomatous polyposis (FAP)
3 groups
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Familial Mediterranean fever (FMF)
2 groups
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Hemophilia
4 groups
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Hyper-IgD syndrome (HIDS)
2 groups
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Lysosomal disease
4 groups
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Neonatal-onset multisystem inflammatory disease (NOMID)
2 groups
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Organic acidemia
4 groups
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PFAPA
2 groups
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Polycystic kidney disease (PKD)
2 groups
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Prader-Willi syndrome
3 groups
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Pseudomyxoma peritonei (PMP)
9 groups
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Rare diseases
13 groups
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Schilder's disease
4 groups
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TRAPS
2 groups
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Von Hippel-Lindau disease (VHL)
3 groups
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Wilson's disease
3 groups
Rare diseases
A disease is rare if fewer than 200,000 people in the United States have it. There are close to 7,000 rare diseases and about 25 million people in the U.S. have one. Many rare diseases are caused by changes in genes and are called genetic diseases.
Sources
National Organization for Rare Disorders
MedlinePlus - Rare Diseases