Another sarcoid patient posted that they wanted to know about Humira as treatment. I strongly recommend Humira. You need to try it and determine if it is effective for you but it has saved my life. I also strongly recommend that any person with active sarcoid whose doctor is prescribing prednisone or prednisone derivatives, first get a bone density test as a baseline. I had been under treatment with the top pulmonary sarcoid expert in NY and when I started bleeding 4-8 ounces of blood daily from my lungs, he put me on prednisone 20-40 mg daily for over a year. I had extremely dense bones due to college athletics division 1 and years of weight training. I gained tons of weight on prednisone and stopping even for a week caused symptoms to restart. I finally went to a top rheumatologist at Hospital for special surgery (who has tons of Sarcoid experience) and was moved to Humira. I was able to get off prednisone after three weeks and have been much better. My symptoms resurfaced once because I went 8 weeks without humira due to insurance company disputes. One large side effect of the prednisone is that I discovered I have osteoporosis due to the prednisone. My Pulmonary doctor never mentioned the bone distruction side effects of Prednisone. Humira has caused me to get some sinus infections but I stretch the dosage out to 10 -12 days apart when I experience these and am very careful to avoid people with any kind of cold or flu.
I would almost say that with Humira, I am cured. I have some residual joint pain from the prednisone usage but Humira works on the Sarcoidosis. I have been told by a couple of doctors who are in research that Humira, although designed for Arthritis, is almost a perfect solution to Sarcoid if you designed a medicine to biochemically target Sarcoid, Humira would be it. It works on the TNF (Tumor Necrosis Factor) which is part of the basic mechanism of Sarcoid. Humira is an Anti Tumor Necrosis Factor medication.