Muscle spasticity

Has anyone used an all natural alternative to Baclofen such as magnesium. My daughter has been on Baclofen for almost at year and I don't think she has slept a whole night through since. I also feel like she is becoming increasingly irritable. Maybe it's not the Baclofen but we have definately decided to explore other options to see if that helps.

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Elliot was on baclofen for a short while, not for spasticity as he is dyskinetic, but for sleeping....and it gave him night terrors! So it can affect sleep. I've not heard of any alternatives for spasticity except things like botox. A baclofen intrathecal pump is very good but it is huge and not something we would consider at the moment (not sure it would do any good anyway) but it delivers a fraction of the dose so side effects are minimal. Its so difficult :-(

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Thank you, that makes a lot of sense. We have an appointment in 2 weeks to discuss the issue with the neurologist.

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Some things we have learned about is relaxing the muscles with taking a warm bath with something like sage or lavendar. We have used hot packs then a massage oil (generally in morning). Or we have tried a heat blanket to warm up the legs/arms. A Naturopathic doctor may be more helpful to decide if magnesium could work. We have been doing ABM to help with spasticity and we have also been investigating the idea of a chiropractor as another mom has had a lot of progress with her son. If treatment affects the nervous system/brain it will have longer lasting affect, the massage/heat/mag/baclofen help the muscles for short time and need to be repeated. So the ABM therapy has so far been the most helpful along with the SPML surgey for my son' s legs. When we went to suit therapy we also learned a lot of exercise to do with the arms....when our PT had said there was nothing that could be done for the spastic arms. Our physiatrist suggested baclofen 3 years ago and I said no thank you... I really hope you find something that works well for you little girl. Our son is one of a triplet and in general he has never slept as soundly thru the night like the other two. However it has gotten much better now that he is 5. When he does wake up , we bring him to bed and cuddle and ofcourse he sleeps like a baby the rest of the night. Sweet dreams for all of you!

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Hi. We have never used baclofen, but my son has a lot of spasticity and we use Klonopin for sleep. I only agreed to it because he was truly sleep deprived and that made everything worse. It really works well and there haven't been any side effects that we have noticed. It can be habit forming so we don't give it during the day. My guy has mixed tone so while he can be really spastic, he can also be low tone too. I have noted the things that keep the spasticity down- good sleep, enough physical activity (pool therapy is a great way for him to exercise his muscles), and a routine to reduce stress. Stress of any kind seems to be the major spasticity trigger. I met with a woman who sells DoTerra essential oils and she had some ideas for therapeutic use of oils like lavender. I used the lavender sample she gave me and only noticed a little difference. The oils are pretty expensive so I didn't really explore all options with that. They also have these diffuser machines so it's in the air and that is supposed to be most effective.
For us though, the only really helpful solution has been Klonopin. It has made our lives soooooooooo much better.

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I know nothing about Botox or Baclofen, I am a Spastic Quadriplegic and grew up with Valium, because there was nothing else available, at that time to calm my spasms. In the early 70's Dantrium came on the market, through a division of Morton Norwich (the salt people), and it has been controlling my muscle spasms, adequately ever since. Dantrium, (Dantrolene Sodium), is a muscle relaxant that effects the peripheral nervous system which doesn't effect the thought processes, whereas Valium effects the entire Central Nervous System. I have had virtually no side effects with this medication.

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Magnesium? Yes, it can be a contributor to some mild , muscle relaxation. Too much magnesium, and this depends on body weight, will produce massive diarrhea. There are really no natural spasticity reducers....for the severe stuff. My son is extremely spastic and we have tried every med except a baclofen pump which we refuse. Shiatsu is somewhat effect for short periods.

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My son (used to be spastic from age 0), now said to be athetoid/dyskinetic, has improved a lot from the many therapies we've done apart from the traditional PT & OT. The main ones were the IAHP program, HBOT, Suit Therapy, Aquatherapy and ABR. Personally, I believe that what prevented his high muscle tone from getting worse (before-leg scissoring, hands clasping, body lifts like a log when only 1 leg is lifted at supine position, whole body turns instead of just the head when he's called) was HBOT and Aquatherapy in a heated pool (94 degrees Fahrenheit). But the intervention that really improved his body overall (aside from nutrition, of course) was ABR- Advanced Biomechanical Rehab of founder Leonid Blyum (Blyum.com). It is a long arduous work (a form of touch therapy) but it loosens up the rigid muscle and promotes dissociation of movement and better range of motion. I therefore would highly recommend this approach to begin with, if spasticity is the main issue. I personally believe that the result is really worth the sacrifice.

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Nayeli mentioned ABR (Advanced Biomechanical Rehab) as an antidote for severe spasticty and I would like to highly endorse his perception. My son (27) is severely spastic and rigid with numerous contractures. We have worked with Leonid Blyum since 2002 at the center in Montreal (there are centers throughout the world). ABR is parent time intensive, requires training and evaluation but it has preserved my son's quality of life tremendously. ABR allows work on the fascia which supports the muscular and skeletal systems of the body...it has allowed us to use no medications and have no surgeries. I high recommend ABR. HBOT also provided some initial relief many years ago.

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Philipdz, we've been at it (ABR) since my son was 6. He's now 12. By the way, I forgot to mention we were also doing WATSU (you mentioned shiatsu) aside from the usual Aquatherapy. WATSU (water shiatsu) is a bodywork too done in the heated pool which is very relaxing (physically, mentally, emotionally) and nurturing. When I was receiving watsu (client stays passive), I felt that the body stretching and other techniques that are done in a heated pool provides so much pain relief and comfort. Also, my son's developmental pedia himself (after trying it once) said he had the most restful sleep & several hours longer than he's able too on enday he did WATSU. This is the same feedback we got from our many clients (we built our own center in our country because of my son's many problems from CP). I forgot to mention that a child can become all the more spastic and weak (and eventually osteopenic) if he doesn't move a lot. So, for my son, we also did the GigerMD Therapy. We still use it to this day and maybe it continues to help his condition (as we are now able to start him on walking with crutches). With GigerMD, one equipment can enable a child do the cycling movement while on his back. Because the machine can be height adjusted, it can "bypass" an injured knee (dislocated) or hips (subluxation) which are common in rigid children.

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