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What a day... We woke up with an hour to get to HANGER to get his leg braces... we rushed got down the road a few miles forgot my cell phone had to go back then go there with 4 minutes to spare. As we waited my son was making horrible faces. He twisted and snorted and then gagged I was almost sick watching him. I said are you ok?, He said yah .. just got something in my throat and it won't come out. I got him water and he kept on until he was able to get it up. Ok won't grose the world out but what came up was a color you don't get unless your sick. Last week he had some of this and I took him to the Dr and she said he isn't running a fever don't worry about it. I sat in that office as they fitted his braces and thought take him back to the doc or wait...Then the more I tried to focus on the braces and what was going on something was eating at me and I called the Dr... She said bring him in. SO ...we got the braces done took about two hours and then headed off another 20 miles the other direction to the Dr's. I had been fighting my sinuses for a week and said hey check us both out. Well she looked over my son and listened.. and listened closer and then said she heard something in his chest. Put him on heavy drugs that probubly would have not been needed had she treated him when it started. Just urked me then gave me antibiotics for my sinuses and then said hey do you still have your nebulizer and I said yes she gave me a set of tubing for Matt and said he needed to have two treatments a day to help clear him up.... I think being overly tired has made me overly grouchy but I swear they don't treat people the first time they come in so they can make more money on the second visit when they are over the top sick.

Back to the leg braces. I forgot how tall my son was until I was given the bag holding his exoskeletons...They hit me at my stomach and I am 5'8. Love the locking system they have on them they are dial locks?... they lock on their own and unlock with a lever at the side of each leg. Very easy to use.

hope to sleep more tonight drive to orlando tomorrow to meet with the easystand people at thearapy and try out the new legs.

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Fever

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I have your son on my prayer list. I am following his recovery and he IS making great strides. I did not realize you are in Florida. There is a place started by a mother who refused to believe that all her daughter's future held would be in the wheelchair....
Amanda was my daughter's roommate at Shepherds in Atlanta in 2007
Step It Up Recovery Center
508 Central Park Drive
Sanford, FL 32771
http://stepituprecovery.org/

The Step It Up program sounds wonderful, to bad they want 100 dollars an hour to go plus a 200.00 dollar deposit. That kind of puts that kind of therapy out of reach right now... I am financially knocked down by the initial injury costs. We hit our catistrophic cap in a matter of one month. His hospital bill was over 500.000.00, Wheel chair over 11,000 Leg braces 4700.00, Standing frame they fitted him for today 7,200. self contained cath bags 350.00 a month and medications 800.00 a month, Hospital bed 1,200, Transfer shower bench 400.00. padded camode 500.00 ... The costs just never end it seems.
I don't know what we will do come October 1st and our new fiscal year starts and we have to cost share everything again... ochy!!!

One suggestion is to ask friends, family, your community to have a fund raiser for his continued rehab. Amanda's mom and family worked hard to do several fundraisers for Amanda to go to Project Walk and Push to Walk.

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