bummed about living with SVT everyday

• By careh
• Posted June 25, 2009 at 8:54 pm
• Report post

I can so relate to you! I have had electrical problems since 1981 (I was 22 when diagnosed), and also had a failed ablation back in 2004. I just walked into the grocery store with my husband and almost passed out because my heart rate soared and got unstable. I was out of breath and nauseated and had to cough several times to get "back in synch". I am on 160mg of beta blockers, 200mg of calcium channel blockers, and digitalis each day, and lately the meds have not been keeping me stable at all. I am always exhausted, and I get out of breath just doing my radio shows (which are pre-recorded mainly.) I also am being treated for angina as well with nitro patches and pills.
Are you under medical care? I am uninsured so basically I'm on my own. I just see my cardiologist once a year to keep my meds up to date.
Please know that you are not alone! I am here if you need to talk.
Carolyn

• Reply

• By Tammy1
• Posted June 25, 2009 at 9:33 pm
• Report post

Hang in there! I think there are several persons on this site who know exactly how you feel.
Hot weather is hard but stay hydrated, stay away from sodas and stay as cool as possible, it helps.
I am so proud of you that you are going to continue with nursing school! I loved nursing school! It is always great to have goals to stay focused on. You can do it and I am sure you will find great support through your instructors and fellow students. You are (hopefully) going to love it! I started having SVT at 15 years old and have had many misdiagnosis. (My first v-fib was October of 2007) Don't let it get you down, which is hard to do and easy to say. It is hard to live with at times and sometimes you don't see why you should even get out of bed. But life is what you make it. The bad days I work from my bed (thankful for my laptop and cell phone), my good days I am off to work and doing my normal activities with the kids. Down side, I can't drive and have to depend on everyone else a lot. Also, I am never left alone for any length of time and the family freaks out when I don't answer my cell right away. I had to quit my first love, nursing, and redirect my life. It is all working out.
I am on Toprol XL as well, 150mg daily. It makes you tired and foggy headed sometimes. It is difficult and I wonder at times why this is happening to me. I have an ICD and I get paced almost everyday, out of 'bad' rhythms . I am not a candidate for ablation but wish I was. I am thankful I am still here and that you are too.
Make sure you get a medical alert bracelet and wear it at all times.
You will do great, take it one day at a time and just love your life. You really are richly blessed.

• Reply

• By angSVT
• Posted June 25, 2009 at 9:55 pm
• Report post

I am so lucky i have such a wonderful family. both of my parents are nurses so they take wonderful care of me on my bad days which seem to be more frequent with this hot weather. I am going to have to quit my part time job at KMART because it is not air conditioned (can you believe that) and i had to go home early today. On my good days i feel optimistic, sometimes i feel like my old self, and then other days im scared to get out of the house for fear of feeling bad. I am kind of like you in the fact that i am not left alone alot. when my husband is at work i like to go over to my parents house in case i start feeling bad. Your message really helped lift my spirits. i cant wait to start nursing school. i know it will be a lot of hard work but i cant think of anything i would rather do. Thanks so much for the support you have not idea how much it means to find people who you can relate to.

• Reply

Add to the discussion