Well, I am coming down off prednisone despite what my doctor wants. I made it to 5 months at 60mg daily. Never had mood changes, but other side effects have made it so horrible that I feel like I have no life. I sometimes wonder how great this remission is supposed to be if I can't walk, see, work, etc. Major rapid weight gain. No doubt it is severe Cushings. I am now on 30mg. I did 2 wks at 40 then down to 30 and wanting to go down to 20 soon. I have 4 children. 60mg had me numb from head to toe. I look like the Michelin Man with my arms out to the side, huge rolls around my neck making it difficult to breathe. I can't get off this quick enough. I have appt with Neph on 23rd, so we'll check urine then. I feel 1000x better than I did a month ago and I still feel horrible-go figure. This is the slowest my life has gone in the last 20 years. I am hanging in there mentally, but losing patience. Diagnosed with FSGS in March/April. I am more worried about having another episode of CHF (thats how I found out about fsgs) due to the 65 lb weight gain in my upper body. I see that alot of people are treated by Endocrinologists along with there nephs. Tried making appt yesterday and they are waiting for my last labs. Glad I was reccommended to this site--it seems very helpful and comforting at the same time. I just want to be able to play with my 3 year old again.