Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
aimee121477's journal
Choices, decisions, confusion & frustration. Anyone familiar with Tomatis?
- By aimee121477 · Posted April 1, 2009
- 0 replies
- As you all know my 3 year old son has NF1 showing no tumors or any other problems for that matter except some delays. He is delayed in speech and gross motor so we have him working with a speech therapist ...
Lost Again
- By aimee121477 · Posted October 14, 2008
- 7 replies
- Ok so Kyle had a neurologist appointment today. It was the first appointment after the official diagnosis of NF1. I went in expecting it to be somewhat informational. Yeah right. The doctor gave him a ...
Normal curiosity making me nervous...
- By aimee121477 · Posted July 12, 2008
- 16 replies
- Well it happened for the first time last night. My son was undressing for his bath. He looked at his belly which he proudly pointed out to me "belly, Mama!!" Then as usual he shows me all of his boo boos ...
Official diagnosis brings me to tears at Barnes & Noble.
- By aimee121477 · Posted June 19, 2008
- 55 replies
- Well, I finally got a call from Kyle's neurologist letting us know what the MRI results were. No tumors, lesions or masses to be concerned about, however, the MRI did show spots called NF1 spots in his ...