Confused/ Is my T-score bad?

I am 46 years old and just had a complete physical done, along with a bone density test. My bone density came back abnormal. My general doctor called me yesterday to let me know that my test came back abnormal, my L1 -L4 T-Score - 3 and my Hip T-Score - 2.8. He has referred me to a Rheumatologist at the end of this month. He also said that my ALT serum was abnormal, Basic metabolic Panel had abnormal readings and also my CBC had abnormal readings. He said that when I met with the doctor this month he will explain everything to me. He did say I fell in the category of Osteoporosis. My brother, 47 who has Ankylosis Arthritis, could mine be genetic? I am very active and run, eat right and take calcium, so I thought I was doing everything right. Thank you all for your advice. I am so grateful to run across this website, Lisa/Twinkie

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7 replies. Join the discussion

I do know a little about osteoporosis. You are at the start of Osteoporosis. The T-Score -2.5 is the start and then the -3 means that one is a little worse. That is still not terrible. Don't get too scared because of that. But do get on some medicene so you don't go down any further. If you stay where you are, it's still good. Some people do gain a little bone density with medicene and calicum.

I'm not too sure if I'd run though. You could put too much pressure on your legs and hips. It could cause a break and a fall. It takes a lot longer to get over a fall with osteoporosis that normal. Walking and small hand weights are great with those scores.

Check out www.toneyourbones.com It may help you.

I also take Citracal with vitamin D. That's suppose to be the best. I'm past where you are. I'm on the Forteo Shots. Don't let yourself get any lower! Fight it and do everything you can to stay there!

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Heck!
Dear Twinkie:
I just composed a lenghthy response and lost it somehow!
Boo!
I shall return and crank it out again.
Lucy Buckley PT

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Dear Twinkie:
Your score is low but not the lowest I've seen nor than it could be. Your BMD is 1/3 bone strength -- the other two parts being bone quality and bone architecture which cannot be measure non-invasively. So, don't be too alarmed, there is much you can do but you need good advice and I would recommend, along with your physician, that you seek out a physical therapist who is skilled and knowledgeable about the manangement of osteoporosis. There are people who do "all the right things" that have severe conditions and people who do "all the wrong things" who have normal bone--there is no justice and no easy answer.
If you are used to running you could be ok. However, that might depend upon your alignment when you run. Also, people have had stress fractures in the feet and legs from running (and other activities.) This is why you should see a physical therapist who can check your alignment and activity level.
If you'd like to "talk" to me personally, log onto my website and send me an email through it. Good luck!

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Twinkie: I was just diagnosed with osteoporosis -3.0 in the L1-L4 and Osteopina in my hips. As I have written before my back pain is so awful. I am now on Actonel 1x week. and I take supplements. I have to be rechecked in one year. What you wrote, appears that you have advanced osteoporosis like I do. Unfortunately. I am still finding dr's who may be able to help.
good luck
pamela2

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Happy Mother's day to you all. Thank you so much for your responses and it gives me such encouragement. I know that I will do what it takes to go into this with a positive mind so that I can fight this and know that I can turn this around. I thank the Lord for all things and this is a blessing because I know that I will become even stronger and more aware that I am not invincible. It just makes me realize even more how important it is to take care of ourselves. This website, one of the many things that I will be thankful for to embrace the road to a stronger Twinkie.... God Bless and Happy Mother's day!!

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Hi Twinkie,

You are youngerthan me (Im 59) and your T score is not really BAD ...heaps better than mine ... -4.9 .
Diagnosed 2005 but not told how bad that really was. Put on Fosamax for 18 months and stopped after hearing about jaw decay side effect (its supposed to be more from the injected fosamax - not what I took in tablet form), I was 56 yrs oldwhen started F.. due to a fracture of T7 8 weeks ago had a new BD scan done .. the score is still same - so either I stablised or the fosamax helped. My score is what I should be at 80 or 90 not under 60.! Scarey stuff. So thats why I am now on Forteo. I did not have a fall - just gentle movement when cleaning in kitchen - straw that broke the camel's back. Dont know if I'll ever be pain free.. optimism is stretched some days more than others. My score is also due to Scheuermann Disease as a child - which depletes tissue around upper spine - no cure (undiagnosed till now) AND then menopause "finished" the job. wonderful. Aint it great to find out were are not Invincible - but being women we can put up with a lot more pain than the guys let me tell you!! Good Luck. Aida

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Hey Twinkie,
I just wanted to reply again. I read your question over. Sometimes that helps. I also read all the other answers. It can be very confusing with so much very needed information given to you all at once. The last reply sounds more like me. I am also on Forteo, the daily shots.

Now, is the time for you to learn all you can about Osteoporosis. I wish I could draw you a chart like my doctor did for me. It helped me understand.

But if you divide a square chart into three pieces, or draw two lines dividing the square into 3 equal sizes crossways, that is what my doctor did for me.

Then you end up with a top part of the square, a middle part and a lower part. That whole square is Osteoporosis. The first part is where you are. That shows you that you are at the beginning of Osteoporosis. Your number 3 is at the bottom of that part though. You could fall into the second part anytime.

That is what is scary about Osteoporosis. You have no idea when you start falling, how fast you fall. That's why one lady said that each of us can do everything we can do in our power and still fall. That is true. But still do all you can do. I would love to be where you are! And even if I only gain a small fraction, I will praise the Lord for that.

But it is still very serious where you are because it is a fight to stay there. So I still encourage you to do all you can for yourself. When people think they are at the top of Osteoporosis, they think it's ok and maybe can miss a calcium or two. I have relatives who do not take this disease seriously but you have too.

A -3 could be on the way of going down. That is why I seriously wanted to make sure I said something to you to let you know, just because you have better numbers that others, you are still in the fighting zone. I guess when you are where some of us are, you don't want to see some one where you are get to here. So we are kind of protective and worrysome of our fellow Osteoporosis friends. You be safe and do all you can to stay there and get those numbers!

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