about forteo

Has anyone had a lot of side effects from taking this drug? I am a little concerned at times.

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Trinity 3, I managed to stay on forteo for 1 3/4 years with the help of celebrex and tramadol. I experienced constant muscle and joint pain, severe cramping of the hands and feet and many other side effects. It was the same on fosomax. I read somewhere that if you had side effects from any of the bisphosphonates, you would also have side effects from Reclast. The difference is that you can stop the pills and injections but once you have the infusion, the medication is in your body to stay till it starts to lose it's effectiveness. I have said no to reclast. Be sure you know what are the bisphosphonates. Good luck

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I had some side effects on Forteo after being on it for 3 months. The side effects came after I was off it for a week due to travel plans, but I had severe pain in my hands/wrists/and ached all over. I was extremely tired. I have been off it for a few weeks, and I am thankfully back to normal. I am not sure what they will suggest next.

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I had very few side effects - just a few aches in my hips and legs that were temporary. My scores went up so I was pleased with the entire experience. I hear side effects are different for each person. Good luck!

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I have been prescribed it but havnt yet started taking it, it seems to have many problems. I cant take Fosomax so I dont know what to do. I am going down the natural route at the moment.

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thanks for replying. More info the better.

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new to the comput....new to osteo...forteo....what is the natural route? I know about added calcium and vitamin D.....what am i missing? And I am also taking 2000 iu of vitamin D.......is anyone taking that much a day?

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I have been taking Forteo for one month and so far have had no side effects. Good luck.

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Hi. I have also been on forteo about 1 -3/4 years. I began having some side effects after about 6 months. My doc encouraged me to stay on the med, especially because there are times that I don't take it due to traveling. However, it seems the side effects are getting worse and I am seriously considering stopping the med. My side effects include extreme fatigue, aching of muscles and bones, and during the past months I've started to become depressed. My doc put me on antidepressants since depression is considered a significant side effect of forteo..... but hey, who wants to have to take antidepressants because of a bone med? So, I have a dilemma.

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Hi. I'm not sure my reply got posted, so I am sending another reply.
I have also been on forteo about 1-3/4 years and I am seriously considering stopping the medication. I began experiencing the side effects of fatigue and achiness about 6 months into the medication regimen. My doc encouraged me to stay on the forteo, especially since I don't always take it regularly because of travel. However, I continue to have side effects that are becoming worse. My side effects include extreme fatigue (interferes with work), aching in muscles and bones, and during the past 2 months I've become depressed. My doc put me on antidepressants because that is a significant side effect of forteo. However, who wants to be depressed and have to take antidepressants because of side effects of bone meds?? So, I have a dilemma.....

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Hi,
I have just started investigated what's online about adverse effects after taking Forteo and am scared about what I'm reading. I was on the med. for 10 months and it did help me go from osteoporosis back to osteopenia in that time. Since I was only 55 at the time, last year, my doctors thought that was rather young to be in the category of osteoporosis, so I agreed to take Forteo. I had to start and stop several times because of joint pain, mild tingling on upper thighs and lower buttocks, and leg cramps, buttoughed it out and took the medication consistantly. Several months after stopping the meds, since I got a good bone density test, the tingling in my thighs seemed to increase and so did lower backaches, which I have had for many years, but nothing to the extent I experienced in 2009 so far. Possibly coincidentally, I don't know. It got to where I could not sit comfortably or lie in bed without ice packs to ease the pain. I'm kneeling as I write this. I have now been on Tramadol for pain, 6 weeks, and am having to increase the dosage because it is not working as well. I have been to 3 doctors that say I have a slightly protruding disc 1.9 mm, but "it shouldn't be causing this much pain". The back pain and now includes my hips, numbness comes and goes, my Achilles heels ache a lot. I'm starting to think it is possible that there could be a connection between Forteo and the issues I'm having, but of course no doctor is going to acknowledge that connection, but they cannot seem to determine the problem. The only position I am comfortable in is standing and that's not possible at my job for very long. I was told to swim and that should ease the pain, even though I told the doctors that exercise seems to exacerbate the problem and numbness cannot be a good sign. I've always been an active person, so I'm really depressed about this whole thing. One other note, I have been sitting at a desk job for the last three years and I haven't done that for a long while. The furniture is not the best. I do try to get up and stretch, and walk around a bit. Is it just age creeping up, I don't know, but I feel like the doctors I have been to aren't helping or understanding and perhaps they're thinking, "it's all in my head". All I know is I'm in the worst pain ever and don't know a cause or solution. Okay, I've vented. Are there others out there with this scenario? Thanks for reading. I just want my old self back, old bones and all. I'll continue to research and report back. Peace & Love.

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hello...I am 51 yrs young and have been on forteo for 3 months and have had some pretty rough times. The pain in my hips and back were so bad for one weekend that I could not walk straight up and a 100 year old could of beat me in a race (no offense to the 100 year olds). I have on and off pain in hands, wrists, feet, ankles, achilles heel, hips, back. ribs, joint pains, asthma, cough, congestion, sensitive, and quite cranky at times. I also feel like I want my old self back and sometimes feel like it is also in my head.....but I am going to hack this out.....I feel like I do not have a choice but to fight and....I too like to vent....it felt good!! Thanks for replying.......P&L

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True......Can you feel a difference when you stop taking the forteo for a week? Do you feel like the side effects get worse? As far as the depression...it is hard. We now have to think about it everyday. My lifestyle has changed.....and the way I think is different....but.... change is good!! Good Luck ....just dont be too hard on yourself. We have a lot to think about...plus we are not getting younger...so that might contribute! ?? !

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Well, I am 55 going on 56 in September. I work out at the gym with a personal trainer from 3-4 days a week doing cardio and weight training for my bones. I love lifting weights and feeling strong! I can tell a difference, though, between the soreness of weight lifting versus the forteo. Like some of the other posts, I feel it in my feet, fingers, hands, legs, arms, elbows. Sometimes it wakes me up at night.,,, and I hate the extreme fatigue that I get with it and now the feeling of depression. It used to be that I could go off the forteo for a couple of days, feel better, and then resume the dosage. However, the longer I have taken it the longer it seems it takes for me to bounce back to my old self. I really don't want to take it anymore because of the side effects in my case, but I also want to have strong bones. It's really a dilemma for me.

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Hi Bonnytiz. What kind of things are you doing as you pursue the natural route for your osteoporosis? I'm interested since I have adverse effects from the biophosphonates and I am now having side effects from forteo. Thanks for any suggestions...

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Wille....good luck...I too wake up at night in pain.


Bonnytiz....about that natural .....willie asked about...I too am intrested. I read about the prunes....i guess i might give it a try but hesistant...

thanks to owie, kinder, bonebuilder, bonnytiz, seawrench, mrader, willie1 ...for being the first to respond...making me feel welcome.....

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Trinity 3.... stay in touch!!! We're all in this together and have much we can learn from each other. Just reading the posts in this discussion has felt supportive for me since I've been struggling with trying to decide what to do next. Hubby tries to understand but it is different when we are the ones experiencing the side effects.

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Hi everyone,
I am so sorry you are all having problems, this makes me more convinced that Forteo is not for me. I am on anti depressants anyway.
Why dont you all just come off it for a while,I dont mean just for a week, I think it would need longer than that for your bodies to adjust. At least then you would know if it were the forteo or not. I have thoroughly researched it and the symptoms you are describing all fit in. I just cant see the point of making yourselves ill. Maybe Im wrong but its just my point of view.
By natural route, I just mean plenty of exercise, with weights if possible,calcium/vit D. I am also taking Boron, magnesium and Vit K (really important) I have a glass of warm water with the juice of half a lemon on rising, this is supposed to address the acid/alkaline issue. I also try to have another glass during the day. Ginger is good as well. I am trying to eat prunes but sometimes I cheat and drink prune juice instead, also pumpkin and sesame seeds.
I am looking into getting a Juvent vibration plate, very expensive but if it keeps me off drugs then I will have to cope with it.
I also have bought a Wii fit to help with balance, it really helps, I have improved such a lot. This may sound silly but also standing on one leg is supposed to help with balance and with bone building, its a bit difficult but I am getting better now.
My plan is to try all this for a year or so then have another scan, if things havnt improved I will review the situation again.
This is just my personal view and not intended to influence anyone's decision, its so difficult, none of us want broken bones, but who says we will get them, people with strong bones also break them!
Keep in touch, its so helpful for us all.
Best wishes

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bon.....I put up with the side effects because I have already broke 7 bones (each different ones). I feel like this the only thing left to do. I do want to do natural along with the medicine. I am very active and want to stay that way. I have been a dancer since 5 years old and now do another work that is physical till 51 now. I actually need help. and I would have pain if I had something broken plus I would be somewhat inmobolized.so......i willl put up with the side effects.....and make your decision not based on my side effects. I think I have more than most. I do not want to discourage you. I guess we all have to make difficult decisions that we can live with. I choose to do everything that I can......medicine now....and I going to have to look into more with my nutrition so i thank you for some ideas. Good Luck bonnytiz.....

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I was on Forteo for 4 1/2 years simply because i fell through the medical cracks (pharmacy ignored it, doctor ignored it etc.) and just stopped a few weeks ago. I had absolutely no side effects at all from it and my score skyrocketed!! As a matter of fact since I have been off it my aches and pains are much more pronounced. Wondering if everyone's malaise is not simply a sign and symptom of osteoporosis itself. I am seeing a specialist in a few weeks and hope I can safely go back on this miracle drug though I doubt it because if its anabolic action--think I would rather put up with pains than bone cancer!!!

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Trinity, I am so sorry you have broken all those bones, I can understand where you are coming from and why you are persevering.It makes matters worse when you have always been so active, I have been active all my life as well and I never thought I would have this condition.
Caremanager, thats very inspiring, I suppose we mainly hear about the bad things and not the good. 4 1/2 years though, thats a long time.no wonder your results are so good.I dont think they would let you go back on it though, its a problem knowing what to do next.
Thanks for sharing your experience.

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