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SusanL1's discussions
Dr. West- Tried this onGrac Talk
- By SusanL1 · Posted February 5, 2009
- In Lung Cancer Alliance Survivors · 28 replies
- Dear Dr. West and colleagues, I started 150 Mg. of Tarceva on Jan. 23 and the fatigue was so bad after 7 days I had to stop taking it. I was in bed 24/7. I am starting a new 100 Mg. dosage today (2/5 ...
Radition (IGRT)
- By SusanL1 · Posted December 19, 2008
- In Lung Cancer Alliance Survivors · 7 replies
- Has anyone heard of IGRT (image guided radiation therapy)? How would this compare to gamma or cyberknife? Any help you can give me on this would be appreciated. I may be having some radiation to help ...
Bad News
- By SusanL1 · Posted December 15, 2008
- In Lung Cancer Alliance Survivors · 74 replies
- I went to my local oncologist today for bloodwork and while I was there I asked them to listen to my lungs because I'm still coughing so much. They heard something in my right lung and sent me for a chest ...
Does Zofran Make You Jittery or Tired?
- By SusanL1 · Posted December 12, 2008
- In Lung Cancer Alliance Survivors · 4 replies
- Still trying to figure out how to supplement my anti-nausea meds (having a problem with insurance paying for more Kytril). Compazine makes me too jittery so wondering if I should try Zofran. Any comments ...
Anti-Nausea Med Kytril - Now Generic
- By SusanL1 · Posted November 30, 2008
- In Lung Cancer Alliance Survivors · 5 replies
- Hi All: I know a lot of you recommended Kytril when I asked about different anti-nausea meds. Well, I received a prescription for it from my onc and went to pick it up today - I was pleasantly surprised ...
Sorry I haven't replied to people...
- By SusanL1 · Posted November 26, 2008
- In Lung Cancer Alliance Survivors · 27 replies
- Still don't feel good - can't shake this darned cold and cough (and foggy feeling in my head), so haven't been on the computer much - just trying to rest and get rid of this in time for chemo on Monday ...
Feeling Good - No More Nausea
- By SusanL1 · Posted November 21, 2008
- In Lung Cancer Alliance Survivors · 15 replies
- Hi Everyone. Well, I'm on Day 9 of my chemo break and doing well (except for this darned cold and and cough I woke up this morning). I was finally able to stop taking anti-nausea meds 3 days ago (though ...
My Clinical Trial Experience So Far
- By SusanL1 · Posted November 4, 2008
- In Lung Cancer Alliance Survivors · 32 replies
- Hi All, Well, started the trial. We spent the night in Baltimore on Sunday night so we would be there on time for our 8:00am appointment on Monday, supposedly for a biopsy. We got our schedule as we checked ...
Radio PSA Spots Can Be Dowloaded
- By SusanL1 · Posted November 4, 2008
- In Lung Cancer Alliance Survivors · 2 replies
- Hi All: If you know of any radio stations that want to air a lung cancer PSA, there are 4 versions on helplungcancer.com that can be downloaded and put on cds. When you click on them, they will open ...
NOVEMBER IS OFFICIALLY LUNG CANCER AWARNESS MONTH IN VIRGINIA
- By SusanL1 · Posted October 25, 2008
- In Lung Cancer Alliance Survivors · 23 replies
- Finally, after months of not getting a reply from Governor Tim Kaine acknowledging my request (and my husband's - he wrote a separate letter) asking to officially make November Lung Cancer Awareness Month ...
Wrote to Safeway Food Stores Today
- By SusanL1 · Posted October 20, 2008
- In Lung Cancer Alliance Survivors · 25 replies
- I was at Safeway getting a flu shot and doing some shopping, and over the intercom there is an ad for "breast cancer is the number 2 killer among women". When I got to the checkout, they asked me if I ...
Lung Cancer PSA is on Youtube
- By SusanL1 · Posted October 16, 2008
- In Lung Cancer Alliance Survivors · 18 replies
- Hi All: The lung cancer PSA is finally finished and on youtube. It's called "Lung Cancer Awareness PSA". (Yes, I can write a whole PSA script and yet can't come up with a catchy title for it, haha.) My ...
NEED YOUR HELP, PLEASE
- By SusanL1 · Posted October 8, 2008
- In Lung Cancer Alliance Survivors · 16 replies
- Hi Everyone. Although I've had a decent response from TV stations willing to air the lung cancer awareness PSA, it is still far from the response I hoped for. The only states I have heard from are California ...
Back from Vegas and PSA Filming
- By SusanL1 · Posted September 25, 2008
- In Lung Cancer Alliance Survivors · 24 replies
- Hi All; Vegas was a blast and the filming went great, even with the air conditioner not working in the studio. It was so nice meeting everyone that was able to attend and those of you that couldn't attend ...
Need Your Help Please
- By SusanL1 · Posted September 18, 2008
- In Lung Cancer Alliance Survivors · 11 replies
- Hi All: As many of you know, a bunch of us are going to Las Vegas today to videoshoot a psa for lung cancer awareness (shoot is tomorrow). This week a mailing went to over 3,000 media outlets (thanks ...
Has Anyone Heard from Gweena?
- By SusanL1 · Posted September 12, 2008
- In Lung Cancer Alliance Survivors · 0 replies
- She hasn't posted since she gave us the bad news. Anyone know how she is doing? Susan ...
Methadone could be used to kill leukaemia cells & may work on other cancers
- By SusanL1 · Posted September 11, 2008
- In Lung Cancer Alliance Survivors · 4 replies
- Methadone could be used to kill leukaemia cells Methadone could be used to kill leukaemia cells resistant to other forms of treatment, according to a new study. By Kate Devlin Medical Correspondent Last ...
Isn't There A Foundation for People Who Can't Afford Treatment?
- By SusanL1 · Posted September 10, 2008
- In Lung Cancer Alliance Survivors · 21 replies
- Hi All: I remember reading that there was a foundation somewhere where people could go if they could not afford their treatments and scans. I couldn't find that post so if anyone can lead me in the right ...
If I'm on Antibiotics, What will that do to my bloodcounts?
- By SusanL1 · Posted September 10, 2008
- In Lung Cancer Alliance Survivors · 3 replies
- I've tried to find the answer to this on the internet, but can't find the answer. Anyone know? Thanks. Susan ...
Something Else We Can Do for Lung Cancer Awareness
- By SusanL1 · Posted August 30, 2008
- In Lung Cancer Alliance Survivors · 2 replies
- Hi All: About a month ago, I had sent an email to the person in charge of our homeowner's association newsletter, asking her to add the lung cancer flyer to the community newsletter. I hadn't received ...