j-tube balloon button

Waiting for Doctors office to call - I think my balloon just popped for my button. I was sitting here and suddenly heard this pop and at the same time felt something release. Like posted earlier I have been having issues with my button being pulled tight from gas/pressure to the point it is hard to get a piece of gauze under it. Well now I have plenty of room which makes me think it poppeed. Anyone have their j-tube button pop.

Report post

14 replies. Join the discussion

I have never had that happen and my J-Tube has in for almost 6 years. Interventional Radiology changes it every 3-6 months. I have had the whole tube fall out. I can tell when its going to completely fall out because it will hurt around the hole on my stomach.

Report post

Yeah mine has been sore off and on but the past few days it has really been hurting and is really red.

Report post

We haven't had that happen with our son's button yet, but it's something I worry about much more with the J than the G.. Are you able to place a new button at home, or do you need to have it done by a doctor? Have you looked into using the non-balloon button that AMT makes?

Report post

Mine did! I felt it and heard it. I tried to tape it till I got to hospital but it slid out.

Report post

My doctor does not want me replacing it myself since it is a j-tube it is not as easy to replace because you have to make sure the tube in in the jejunum before inflating the balloon.

Report post

They must have placed yours differently than they did my son's.. His is able to be changed out at home because they did a roux en y and created a simple stoma (very similar to the G port) that holds a low profile button. I wish I had better advice for you.. Do you use anything to secure the button like a belt or tubifast (by molnlycke)?

Report post

I wish I could change mine at home. I don't use anything to keep it in place it stays in place by itself. Oh where is your son's stoma? Because they used a AMT mini classic which is supposed to be used as a g-tube (it doesn't have a long tube connected to it that goes into the jejnum like the mic-key j-tube button). My stoma is located a few inches below the belly button then a few inches to my left therefore the balloon is actually in my jejnum not my stomach. When I researched j-tube button the only one that came up was the MIC-KEY* Low-Profile Jejunal Feeding Tube and it has a long tube extending from the balloon. Their balloon is inserted into the stomach and the long tube fed down to the jejnum. In my case since the button is for g-tubes the balloon is inserted into the jejnum. I was given this information from the company who makes my button when I called because I couldn't find my j-tube button on their website. The woman asked me where my stoma was and when I told her she explained some doctors use their g-tube button as a j-tube by inserting it directly into the jejnum but this is not the intended use for the button I have. I guess if I complain or request a 'real' j-tube button that would require another surgery to insert it into my stomach and the other site would have to heal. Though I might question this when I go. Chris

Report post

what exactly is the button on a J-tube? Don't know how it could be replaced by any one at home. When my J-tube falls out, or every 3-6 months, I have to have Interventional Radiology replace. My tube is placed just below my breast.

Report post

I have a AMT mini clasic button for my j-tube. My stoma is not in my stomach but a couple inches below my belly button then a couple inches over to my left. The balloon that holds the button goes directly into my jejnum and I was told by my doc a j-tube can not be replaced at home. A button is a flat device in which you hook up an tube extension set up to for feedings, there are no hangling tubes just a flat rubber piece like a button.

Chris

Report post

OK, I know what you are talking about. I have my J-tube that has a long tube stickiing out to hook up for feedings. I did have the button kind on time but did not like it at all. when it was time to change my doctor put the other type that i had and liked better. THANKS

Report post

My son uses AMT's mini-one low profile button in his J port, located below and just a little to the left of his G port (so he has two separate buttons, one for feeds and one for draining/venting his tummy). We asked the surgeon to place it in a way that allowed us to change it out at home, or for our GI to change it in his office because we're trying to avoid any further anesthesia as much as possible (17 GJ changes last year due to bad motility).

Report post

The problem we've had with options like the J button made by KC is that it has the long tube that has to go in through the stomach before ending up in the jejunum. When my son had a GJ tube (worked really well for 2 years and not at all the 3rd), that part kept kinking or coiling back up into the stomach. If you're relying on J feeds, and aren't expecting to be able to go back to G feeds anytime soon, the option you currently have is probably a much better one, in my very non-medical opinion. The only reason I'd really look into having a separate G stoma created is if things were improving motility wise and you were expecting to start using your stomach for feeds again, or if you're having a lot of pain due to distension, gas, etc that might be resolved by having a way to vent or drain the stomach.

We're using the low profile gastric buttons in a way they weren't intended to be used but we haven't had any problems with them so far. Just be sure to always have something on hand to place into the stoma (like a foley catheter in the next size down from your current button size) in case your button does fall out so the stoma doesn't close up before you can get to the ER or doctors office.

Report post

What is a foley catheter?

Report post

A foley catheter is usually used for emptying the bladder (thin, flexible, sterile tube-many different french sizes) but it's also used to keep the stoma from closing up if a button/feeding tube comes out and can't be reinserted and you don't have a back up.. Your HHC should be able to get one for you but I'd recommend checking with your GI/surgeon first to make sure you'd be able to place that yourself temporarily..

Report post

This journal entry is closed to replies. We close all journal entries after 90 days.

If there's something you'd like to say, here are some things you can do:

Things you can do