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Rick's discussions
GOVERMENT RUN HEALTHCARE
- By Rick · Posted October 31, 2009
- In VHL Family Alliance · 19 replies
- I was diagnosed with VHL in 1980 and have had a total of 23 tumors either removed with conventional surgery or otherwise taken care of (radiosurgery). I am wondering if anyone else out there is concerned ...
JOYCE
- By Rick · Posted March 29, 2009
- In VHL Family Alliance · 3 replies
- Hello Joyce, I would like to send copies of my scans to the University of Pittsburg or Lunsford @ NIH for a second opinion. Lahey clinic is looking @ performing Shaped Beam Radiosurgery on a tumor in ...
Novalis Shaped Beam Radiation
- By Rick · Posted March 22, 2009
- In VHL Family Alliance · 10 replies
- I have a tumor growing in my Sacral Canal (very bottom of the spine), it is till very small but there is very little room in the Sacral area for any expansion. Because of scar tissue from previous surgeries ...
Tumor in the Auditory Canal (not an ELST)
- By Rick · Posted May 31, 2008
- In VHL Family Alliance · 2 replies
- Hello, I probably didn't put this in the right spot but, I have a tumor in my auditory canal that completely fills the canal. Comparing the scan to a scan done in 2/2007 shows growth from a miniscule ...
Ringing in my left ear and short term hearing loss
- By Rick · Posted May 19, 2008
- In VHL Family Alliance · 9 replies
- Has anyone ever experienced ringing in the ear as a delayed afteraffect of Radiosurgery? Ringing in my ear developed a couple of weeks ago and I experienced hearing loss that lasted a couple of days or ...