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Muriel's discussions
Amyloidosis Support Groups Inc.
- By Muriel · Posted June 8, 2008
- In Amyloidosis Support Groups · 0 replies
- We had an amazing meeting yesterday with Dr. Maria Picken. We lucked out with weather and over 25 shared, learned, supported and ate (food is strength:=). For more information please see www.amyloidosissupport.com ...
Amyloidosis Support Groups Inc.
- By Muriel · Posted April 7, 2008
- In NORD Rare Disease · 0 replies
- In the Boston area this Saturday? Join us for our support group. See website www.amyloidosissupport.com for details. Muriel ...
Amyloidosis Support Groups Inc.
- By Muriel · Posted April 6, 2008
- In NORD Rare Disease · 0 replies
- The Pacific Northwest found support on Saturday. We had 30 people in attendance for that wondeful meeting. How we've grown and bonded and become a real "family". We had people from Canada, Washington ...
SHARON'S BLOG ABOUT JORGE
- By Muriel · Posted December 7, 2007
- In NORD Rare Disease · 0 replies
- Sharon, thanks so much. That was wonderful. Muriel Amyloidosis Support Groups ASG www.amyloidosissupport.com ...
cerebellum cystic lesion and arachnoid cyst.
- By Muriel · Posted November 22, 2007
- In NORD Rare Disease · 1 reply
- Here are some links that may be helpful http://www.emedicine.com/radio/topic48.h tm http://radiographics.rsnajnls.org/cgi/co ntent/full/26/1/173 http://www.cigna.com/healthinfo/nord989. html Good Luck ...
Help for adult with Henoch Schonlein Purpura
- By Muriel · Posted November 11, 2007
- In NORD Rare Disease · 0 replies
- You might want to try Dr. Merrill Benson of Indiana University in Indianapolis. Go to our website www.amyloidosissupport.com and under medical links you will see his name and number ........ Good Luck ...
Amyloidosis Support Groups Inc.
- By Muriel · Posted May 7, 2007
- In NORD Rare Disease · 0 replies
- At meetings we hear all of the time how difficult it is to get support with this disease. It's not cancer or something anyone has heard of and they think you are a hypochondriac. You immediately learn ...
Amyloidosis Support Groups and others
- By Muriel · Posted April 17, 2007
- In NORD Rare Disease · 0 replies
- So many of you have been so kind. Please don't hesitate to let me know how I can help you in starting support groups, or grass roots awareness. Muriel ...
Leukodystrophy
- By Muriel · Posted April 10, 2007
- In NORD Rare Disease · 0 replies
- http://en.wikipedia.org/wiki/Leukodystro phy Found this on the disease....maybe it will help Good Luck, Muriel Amyloidosis Support Groups ASG www.amyloidosissupport.com Toll Free 866-404-7539 ...
Supprt-Marshall Syndrome
- By Muriel · Posted April 10, 2007
- In NORD Rare Disease · 0 replies
- http://children.webmd.com/Marshall-Syndr ome Found the above link on Web MD...it is the first i have heard of it.... Where were you diagnosed and when.....I would find out where most go and where the ...