Just had a good set of scans with results showing my bone and liver tumors are GROSSLY STABLE. That is how it was three months ago as well. What are they doing in there? Lurking? dormant? Wondering where their meal of estrogen went?
I took Xgeva three months and found it caused so much pain (with the Femara?) at least two weeks out of four that I'm going back to taking Zometa every 12 weeks to have 2 horrid weeks out of twelve. Man, the pain was a 7+ and I was depressed as well. Ouchy! every joint hurt. sheesh. And I thought my reaction to Zometa was bad!
Anyway it is 29 months as of June 1 that I was deemed dissabled and I will automatically be on Medicare June 1. I am on Medicaid at the moment having done a total asset spend down to the point of poverty and food stamps. When I called Medicare they told me to go to the Social Security website and fill out a form for possible low income help. I did. They said I was eligible. Meanwhile Medicaid told me to fill out a form for help with Medicare and maybe to become my secondary pay-er. That's what I'm told.
How does that work? Is anyone in my position? Did you also buy a supplemental policy? I still have a spendown (if you are in my position you'll know what that is). One organization doesn't talk to the other and I don't know who to speak to to give me the big picture so I can do what is best for me. Any clues???
Thanks all and G-d bless you!