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Jordensmom's journal
Crazy busy
- By Jordensmom · Posted May 23, 2009
- 0 replies
- I wanted to write about our last visit to the NIH just after we returned home, but it didn't happen. THe trip was flustered, they did not give us enough time, since they cooridinated the flights this ...
progress is progress...
- By Jordensmom · Posted February 3, 2009
- 2 replies
- Jorden just had a check up with his pediatrician, then a few days later a follow up with the rheumatologists at UCSF, and in a few days we head back to the NIH. In 6 months, since the new dosage of colchicine ...
Still going strong!
- By Jordensmom · Posted November 24, 2008
- 0 replies
- Wow, the last few months have been so unbeleivable. In June Doctor Goldbach-Mansky increased Jordens dose of colchicine by .3 mg/day, and the difference is incredible. Jordens last HIGH fever was at the ...
Getting better!
- By Jordensmom · Posted August 20, 2008
- 2 replies
- Well what a painful journey. But I guess with pain and frustration comes wisdom and discovery. Jorden has been taking Colchicine for 8 months. the first 6 months we did not see much of a change, but there ...