What comes next after completion of 6 weeks of BCG for CIS and when?

Do you know how long after the six week BCG treatment the cyctoscopy is done? How is that determined?

Some say 3 month others 6 weeks. I'm puzzled.

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I am having my 17th BCG this week and I always get my cysto 8 weeks after the last BCG. Take care Carol

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Marty, my husband had his last BCG treatment the 2nd week in December 2010 and the cystoscopy the end of January2011. So I would say 6 weeks. His next cystoscopy was the end of April and will be every 3 months for 2 years.

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I have my cyst and biopsy 8 weeks after BCG. He has always done a biopsy with the cysto. Does your doctoe

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My last BCG treatment was April 11 and I had the cysto yesterday, May 9. I don't know how this is determined so am interested in hearing all the replies others will be posting.

Kathleen

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Mine was at 6 weeks which I think is the standard protocol suggested by Dr. Lamm, the BCG pioneer who most bc doctors follow. I was All Clear so now I am waiting 3 months for my next check-up. There are some variations to the timing depending on your doctor so I would just call him and ask.

Ken

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The grade of your cancer should be a factor in the timing. Sadly lots of Uro's follow a low grade schedule as the standard of care. My doc was following the three month look see.... I am T1G3 multiple areas... Three months was too long. With high grade cancer 4 weeks should be the longest you wait, and it needs to be a biopsy not just a cysto, if any cancer is still there time for RC.

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I would like to know if it is worth doing the BCG or just having bladder out? The doc's I have talked to say I can do the BCG and it might get it but they think it will be back down the road.
I am 61 now and have had two resections and bios and it is t1 posibly t2 in one spot.
I would like to get heeled up and quit having to drive back to hospital all the time.
I would like to here all openons. my pryers are with all of you.

Dale

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Had TURBT and started BCG six weeks later. Cysto was done three months post TURBT and my next round of three BCG/wk starts next month. Not fun and not anything we want to go through, but it is medically necassary with this disease. We should be happy the disease is not worse because I have lost several friends to lung and cervical cancers. Once it hits the lung you have about 1 year to live. So sad but so true. At least with BC we can live multiple years before it takes us out.

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My CIS was only in 10% of my bladder, rather than operate BCG was recommended. The BCG wasn't fun but it was easily tolerated. The worst part of it was the constant wanting to go. I solved that problem by wearing a made for men diaper. The urge to go only involved a few drops so the pants took care of that. Otherwise I would be sitting on the pot all day. That problem only lasted one day of every treatment. I also take Oncovite a multivitamin recommended by Dr. Lamm. I changed my diet to fruits and raw vegetables (salad) ever day and have animal protein about once a week with no hormones and grass fed. I gave up coffee and all sodas and only drink green tea and water, and an occasional glass of wine. I also stopped taking Warfarin which is suppose to inhibit the effectiveness of BCG. My wife who is a great supporter of this new diet concocts some very interesting hot dishes using exotic spices and all vegtables and whole grains. All delicious. I reccomend reading Dr. Joel Fuhrman. His book "Eat To Live" is a book I highly reccomend even if you are healthy.

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We're at MSK- having BCG currently- cysto to be done in 6 weeks following completion.

Good luck to you and be well.

Kathy

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My husband was diagnosed with BC 3 1/2 yrs ago when he was 58. He had numerous BCG treatments for 2 years. Then they found cancer cells in routine urinalysis. The bc was found in the prostatic urethra indicating the BCG was no longer effective, it was still considered non invasive, high grade. Three doctors recommended surgery as they felt that it was likely to spread and delaying surgery for too long would make the surgery and outcome less successful. He had surgery two and a half months ago at MSK in NY with Dr Herr and is feeling good.

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My last BCG of six treatments will be June 2. Biopsy scheduled for June 27. TURBT was March 21.

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My doc told me 6-8 weeks after the end of the last BCG treatment. But we had planned a trip prior to my diagnosis, so we wound up doing the cysto after 5 weeks. It all worked out fine, and now I'm doing one maintenance BCG treatment every other month, and cystos every 90-100 days.

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I had a cysto 6 weeks after the 1st TURBT. A FISH done at the same time came back positive, so I had a 2nd TURBT. Turns out the bladder was only inflamed - no tumors. Apparently the BCGS caused the falsh positive BCG. This was all in Nov 08, Jan 09. Since then I had three BGS, followed by a three month cysto. After that cysto, one BCG with three month followup. This continued in 2009 and 2010. In Jan 2011 I had a cysto followed by a BCG and was put on 4 month followups. Yesterday I had a cysto, with an all clear, with a BCG scheduled for June 1, and a 4 month followup. If the Sept cysto and FISH negative, I will go on a 6 month followup.

Hope you have a similar, successful experience.

Ron

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double confirmation-Sloan Kettering- six weeks after BCG
a cysto and they take a sample from the bladder and analyze
before any further decisions or recommendations made

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I just had my cystoscopy after 6 weeks of BCG. My doctor said that my bladder looked clear but did a biopsy that confirmed that there was no sign of the carcinoma in situ. I'll go for another checkup in about three months. Meawhile, I will continue to eat my vegan whole food diet without added fat, salt, or sugar. I also take two oncovites every morning, a vitamin Dr. Lamm recommended. Thank you all for all the interest and support.

Does any one else use food as part of your therapy?

John Garfied

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Glad to see your good response to bcg. Hope you remain bc free forever.

jj

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Hi there,

I had two regiments of BCG. After the cystocopy they will know if you need more BCG treatments or if you require other treatment. I wound up having chemotherapy, six months later they took my bladder. I am in my fifth year "Cancer Free". Minor inconvenience, compared to the alterative. Good luck and God Bless You!

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After reading all the above I have a question. I have TaG3,had 2 TURBTs, and have finished 3 BCG instillations. I was told that cysto would be scheduled for 6 weeks after 6th BCG but no mention of biopsy. Should I be requesting biopsy or is "look & see" ok?
Thank you all as always,
Constantly confused

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I heartily recommend reading Anticancer, A New Way of Life, New Edition by David Servan-Schreiber MD PhD and definitely the China
Study by P. Colin Campbell, PhB
These books moved me to change my diet and lifestyle in away that convinced me that I would have a better outcome because of them.

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