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JacobeanLily's discussions
Prednisone & Chronic Sarc Questions
- By JacobeanLily · Posted October 26, 2009
- In Stop Sarcoidosis · 22 replies
- I've posted many times about the pros and cons of taking medications for chronic sarc (as opposed to acute sarc, which often remits on its own) and here I go again. I've had measurable sarc symptoms for ...
Exercise, headaches and (possibly) foolish optimism
- By JacobeanLily · Posted August 1, 2009
- In Stop Sarcoidosis · 15 replies
- I feel a bit like Coyote from Loony Tunes; perpetually dreaming up ways to beat my enemy, running around with ACME plans, trying to blow up or otherwise obstruct my old foe the Incredible Unstoppable ...
Immune response breakthrough
- By JacobeanLily · Posted July 5, 2009
- In Stop Sarcoidosis · 7 replies
- The Guardian Weekly reports a breakthrough in immune system response disorders, with the "landmark trial in the Netherlands..... of rituximab, marketed as MabThera". The trial successfully focused on ...
Red Reishi experiment conclusion
- By JacobeanLily · Posted May 3, 2009
- In Stop Sarcoidosis · 17 replies
- For the past 2 months I've been experimenting with red reishi mushroom tea (made from dried mushrooms, soaked overnight and brewed the following morning - 2 cups a day) and am now composting my remaining ...
Speech with a swollen head
- By JacobeanLily · Posted December 29, 2008
- In Stop Sarcoidosis · 6 replies
- I have neurosarc and I'm trying to figure out a way of recovering my voice. Right now, it works in the morning - enough of a tease to get me through a couple of cups of tea and a short chat with my husband ...
Neurosarc and the question of treatment - to be or not to be
- By JacobeanLily · Posted December 29, 2008
- In Stop Sarcoidosis · 54 replies
- I have neurosarc. It manifests in headaches, in occasional slurred speech, in temple tingling and jumping tics in my hands and occasionally, my eyes. I am, of course, often exhausted but I am passionately ...
Ankles Which Mistook Themselves For Oranges
- By JacobeanLily · Posted December 28, 2008
- In Stop Sarcoidosis · 24 replies
- I keep reading fleeting references to people's ankles (ie. the doc who told someone sarc is only found in ankles and lungs....?) and yet I can't find any wholehearted discussions on them. Are swollen ...
Sarc-damaged voice - anyone had corrective surgery?
- By JacobeanLily · Posted December 6, 2008
- In Stop Sarcoidosis · 10 replies
- My voice has been weak and unreliable for about a year now. CT scans show that the sarc has now gone up into my neck and head. I saw a specialist earlier this year who examined my throat/voice using a ...