Irregular Heart Beats

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They never have determined what was going on with me. I started passing out. They checked and were supposed to put me on a heart monitor for a week but didn't have the equipment available. I started timing my own heart rate the crude way with a watch or just counting and monitoring pulse. I found my pulse was irregular with differing intervals between beats and that the more serious condition was pauses between beats of two, three or four seconds. I don't know how much of a pause is necessary to put me on the floor, but expect that it exceeds four seconds.

They don't have a clue. We running me through some simple exercises it was found that my bp would decrease and continue to decrease as the exercise continued, but when they put me through stress tests this condition was somehow hidden. To much of current procedure is a guessing game of trial and error and with the insurance companies calling the shots comprehensive investigation is unlikely. None of it works like House on TV; little of that sort of curiosity exists in the medical world.

There are too few doctors, too few students being trained; the quotas for class sizes are so tight that the supply of doctors trained in the US is the weakest in the world per capita. Health care is a business not a social issue for quality of life. Be thankful that groups like Inspire exist to provide and share information.

8 replies

My sacr moved into my heart's pacemaker called the sinus nodes. I had very low & irregular heart rate. It was not until I was in the hospital that they notice my heart kept stopping. You have two sinus nodes if the first does not make your heart beat the lower, second node fires. Sarc had gotten into the primary upper node and it did not always fire. The solution is that I now have a pacemaker that fires if my heart's sinus nodes do not fire. I was told that if this is not discovered most cases are found after the person dies of sudden death when you heart stops.
I also have scar in the lining around my heart & lung which can causes a lot of pain when it gets inflamed called Pleuropericarditis

hi...i had this same problem with my heart..i am taking medication for blood pressure and heart rate...but the thing that has worked the best for me is the remicade infusions.

I'm having the same problem. My cardiologist said "eventually" I'll have to have a pacemaker. I'm not sure how he determines "eventually", because I'm having severe episodes that make me dizzy. The pauses between beats was verified on a 24 hour holter monitor. I'm terrified that I'm just going to die, no warning.

Keep after them! Don't give up.

Michele C

Gck, how bad was it before they decided to give you a mechanical pacemaker?

Thanks, Michele C

hi JWNugent ,You might want to get a sonogram of your heart, I just had one (my internist ordered it as she said Sarcoidosis of the lungs often also involves the heart )
Hope you get the referral you need !
God Bless,
Lise

I had three types of arrhythmia. I wore a heart monitor for 30 days, it showed 8,000 to 10,000 extra irregular beats a day. I saw a wonderful electrophysiologist at the Medical College of Georgia and had a heart ablation (which helped but was not totally successful). Since moving to Florida the electrophysiologist I've seen has steadily increased my Toprol XL to 150 mg daily. I now have had no irregular heart beats since last February. I'm now dealing with the "plumbing " part of my heart (blockages in LAD).
One day at a time and this is going to be a good day! All the best!
Sue

As you have described the doctor had remarked on the irregular heart beat & low blood pressure, but it was not until I was intensive care on telemetry that they could see the pattern. The alarms kept going off showing that my heart had stopped. My doctors opted for the pacemaker because a heart biopsy to prove sarc is considered too invasive and potentially harmful to make that a good diagnostic option and the pacemaker is a good solution. Also my doctor had experience with patients who had undiagnosed scar in the heart. Also, my uncle died of it but it was not proved until the autopsy showed sarc in his heart. Since I have had the pacemaker, the episodes of delayed heart beat have continued to increase so I feel it was well justified.

Have you seen an electrocardiologist yet? They may be able to help you pinpoint more of what is going on. Surely there must be some quality ones near where you live. :-) Aren't you near Houston? Lots of good doctors down there.

Best wishes!
TA

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