Does anyone know of support groups for parents or children of nonsurvivors?

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I just found out that someone here at work lost a grandson who died of encephalitis. He is not only sad, he is angry. He thinks the doctors didn't do enough (haven't we all heard that before?). Before I write to him and tell him about this group and the British group, I thought I'd ask to see if anyone knows of something else. Thanks in advance.

6 replies

Give that person the name of your psychiatrist.
Bringing someone here, where we discuss LIVING after encephalitis will only add to that person's anger about losing a grandson.
I'd think it the same as taking someone with no money for food to a restaurant and have them sit and watch everyone enjoy their meals.
The grandchild is dead from something that this person thinks shouldn;t have killed the child, though many of the infections are 80% to 100% deadly.
Coming here only reinforces the reason for this person;s anger.
Encephalitis is deadly - big time.
Many of us who survive are walking around, partially dead.
I wouldn't bring that person this way.
My commentary,
-dannon
-dannon

Ingrid,
I think a grief support group would be helpful. There are probably some on the web; in my city (Austin) there are also several local groups who meet. They're not specifically related to encephalitis, but with grief and loss.

I checked out what's available at Inspire, and under "Hospice, End-of-Life Care and Bereavement," there is a separate group for Bereavement (Grief). Maybe that's a start.

Pamela

Thank you both. Bevan, I wasn't thinking of having him come here. But I thought about sending him the website for the British foundation. They just give the facts; I thought maybe he could learn about what caused his grandson's death and get some support that way. I think I'll just send his family a sympathy card. He knows that I had 'e' so if he has any questions, I'll let him come to me. Thanks again.

CORRECTION! Dannon, I meant to thank you. I don't know why I typed Bevan's name. Mea culpa!

No, no, you caught me. I am Bevan.
I use the dannon thing because I can't always come up with the KeWL wURds.
I can't believe you figured it out...
-bev

I thought so! I'm much smarter than I thought! LOL!!!

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