Hi Ingrid I am Fairly new to this site, I find it very intersting to read so many stories that are similar of people who have had HSE I am here trying to put this all together my little cousin Frankie who we are very close to is 18 and was just diagnosed about three weeks ago and we are all in utter shock and disbelief that he is going through this Horrific illness, it is so weird and I don't understand much about it... But I'm thankful for this site to be able to communicate with survivors and hear peoples stories. Thank you Veronica Frankie's Cousin !!!


