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Hokari's discussions

Reflux - Pravacid Question

By Hokari · Posted yesterday at 9:02 pm
In Preemie · 4 replies
Hello! I have read in your posts that a lot of your babies are taking prevacid to avoid reflux. My son (28 weeker, 7,5 months actual) has bad reflux, he had the Nissen fundoplication done a few weeks ...

Nissen surgery and still reflux?

By Hokari · Posted November 17, 2009
In Preemie · 3 replies
My LO (7/4 months) had the G-tube and nissen operation about 3 weeks ago. Everything went fine and for 2 weeks his reflux was not existent, his oxygen requirement improved so much (he is still on CPAP ...

Nissen question

By Hokari · Posted October 11, 2009
In Preemie · 4 replies
My son will get a g- tube next week as he has very bad lungs and will probably stay quite some time on the CPAP and therefore cannot be bottlefed. Now the docs told us they want to do the nissen at the ...

Experience with Pulmonary Hypertension?

By Hokari · Posted September 17, 2009
In Preemie · 21 replies
My son (28 weeker, 770 gr) has just been diagnosed Pulmonary Hypertension. So far he has a mild form, but the doctors are quite negative, they prepare us for the worst. He has Chronic Lung Disease, so ...

Long NICU stay...

By Hokari · Posted September 14, 2009
In Preemie · 18 replies
My son (28 weeker, 770gr) has been in the NICU for exactly five months now and he is not even close to coming home soon. His main problem at the moment is his chronic lung disease, he managed to breathe ...

Feeling bad...

By Hokari · Posted August 27, 2009
In Preemie · 10 replies
My baby boy had caught the H1N1 virus and is now in isolation. We are not allowed to visit him at all for at least a week. Besides his medical condition I now worry so much what this isolation will do ...

Baby monitor - which one?

By Hokari · Posted August 6, 2009
In Preemie · 11 replies
I would like to ask the parents for advice whose babies did not come home on oxygen and therefore had no monitor. I know there is ANGELCARE out there and also RESPISENSE. Does anyone have experience with ...

Your opinion - milk spoiled?

By Hokari · Posted August 4, 2009
In Preemie · 7 replies
Argh, I'm so upset about myself!!! Yesterday I went to the hospital and when I came back at night I discovered that the freezer was not completely closed. So it was a bit open for about 9 hours and a ...

Ventilator dependent - need some hope!

By Hokari · Posted July 4, 2009
In Preemie · 37 replies
My son (28 weeker, 770 gr) will be 12 weeks tomorrow. He is still on the ventilator. When he was 6 weeks he received a course of Dexamethasone with this he managed 5 days on the CPAP, but then he got ...

It CAN get worse...MRSA in the blood.

By Hokari · Posted June 14, 2009
In Preemie · 16 replies
A few days ago I was very frustrated because my son (28 weeker, 770 grms) is still on the ventilator (for 9 weeks now, he has chronic lung disease) and his arm was suddenly broken, nobody knew how or ...

Frustrated - how much worse can it get?

By Hokari · Posted June 12, 2009
In Preemie · 6 replies
Today I came to the NICU to visit my little one (28 weeker, 770 gr, now 9 weeks old) to learn his arm is broken. Yesterday I had noticed that the arm was swollen and limb, no doctor or nurse had even ...

New here, introducing my VIP!

By Hokari · Posted May 24, 2009
In Preemie · 10 replies
Hello! In April I had a C-section at 28 weeks, my son Marcus was 770 gramm. Since that he has been in NICU. He is 6 weeks now. It's such a terrible time for me and my husband. Marcus has chronic lung ...