GirlA's discussions

Just diagnosed with Graves disease

GirlA
  • By GirlA · Posted May 20, 2013
  • In Thyroid Diseases · 9 replies
  • Was just recently diagnosed with Graves disease. Doctor prescribed two medications for me: atenolol and methimazole. Would like to hear from other people with this condition. Medicine made me feel kind ...

Diagnosed with thyroid problems/Grave's disease

GirlA
  • By GirlA · Posted April 26, 2013
  • In Neurofibromatosis Network · 2 replies
  • Just had a thyroid uptake test with the iodine and the doctor told me it shows that I have Grave's disease. Previously my blood tests had also indicated hyperthyroidism. Doctor plans on giving me some ...

Do you need friends?

GirlA
  • By GirlA · Posted April 20, 2013
  • In Neurofibromatosis Network · 21 replies
  • Just the other day my husband and I had an appointment with a social worker. My husband was telling the social worker he really wishes that both of us had more friends. My husband only has a few friends ...

Thyroid uptake

GirlA
  • By GirlA · Posted April 19, 2013
  • In Neurofibromatosis Network · 4 replies
  • Next week my doctor is having me do a thyroid uptake test to monitor my thyroid. Recent blood tests have shown my thyroid is overactive. Using some type of iodine, they hope to determine just how overactive ...

Long term effects of medications

GirlA
  • By GirlA · Posted April 14, 2013
  • In Neurofibromatosis Network · 8 replies
  • Pain meds and even anti-depressants can be very helpful in the short term. Would like to know if anyone has experienced any long term effects from these. I try to limit the use of these medications because ...

Tumors/soreness behind jaw below ear

GirlA
  • By GirlA · Posted April 2, 2013
  • In Neurofibromatosis Network · 0 replies
  • Have a new tender/sore throbbing area below the ear and behind the jaw. Probably need to see a physician to determine what it is. Would have to believe it is NF related-possibly a new tumor formation ...

Shaving

GirlA
  • By GirlA · Posted March 25, 2013
  • In Neurofibromatosis Network · 7 replies
  • What do you do when shaving to get around tumors on legs, arms, and underarms ...

Tumors.

GirlA

Can poor diet affect tumors?

GirlA
  • By GirlA · Posted March 18, 2013
  • In Neurofibromatosis Network · 4 replies
  • Is it possible that tumor growth is affected somewhat by diet? A poor diet just might speed tumor growth and that a balanced diet may minimize tumor growth rate. What do you think ...

What to do for pain

GirlA
  • By GirlA · Posted March 16, 2013
  • In Neurofibromatosis Network · 6 replies
  • Have plenty of pain. B1 injections I get to balance a B1 deficiency aren't helping my pain a whole lot. Will probably try B12 injection to supplement the B1 next week, but have 5 more days to go before ...

B1 deficiency

GirlA
  • By GirlA · Posted March 5, 2013
  • In Neurofibromatosis Network · 4 replies
  • Just got the results of some recent blood tests. I had been taking as much b-12 supplements as possible and even occasional b-12 injections because I found them very helpful for neuropathy, pain, and ...

Pain and anxiety and depression, etc.

GirlA
  • By GirlA · Posted February 27, 2013
  • In Neurofibromatosis Network · 2 replies
  • Have plenty of physical pain throughout my body that often limits my physical activity. In addition, I don't get nearly as much people contact as I would like to get-it is hard to keep a complete circle ...

Nodules in neck near thyroid

GirlA
  • By GirlA · Posted February 27, 2013
  • In Neurofibromatosis Network · 1 reply
  • Have a couple of nodules near my thyroid gland. One physician is considering a biopsy of them. Is this a sensible thing to do or is this perhaps an unnecessary amount of doctoring? They could simply be ...

Anti-virus software

GirlA
  • By GirlA · Posted February 26, 2013
  • In Neurofibromatosis Network · 8 replies
  • We have a somewhat new computer that has an anti-virus software (trial-type) that we did not subscribe to. How do we uninstall it so that we can download one of the free anti-virus software that is available ...

NF1 and/or NF2

GirlA
  • By GirlA · Posted February 23, 2013
  • In Neurofibromatosis Network · 5 replies
  • At times the doctors seem to like to make a distinction between NF1 and NF2. From what I have observed including with myself, there are quite a number of us with plenty enough symptoms of sufficient severity ...

Tumor surgeries

GirlA
  • By GirlA · Posted February 23, 2013
  • In Neurofibromatosis Network · 10 replies
  • Have a number of tumors including a couple they found near my spine. Doctor referred me to a surgeon, but he said it's best to leave them alone unless they really become problematic. Surgeries near the ...

B-12 injection

GirlA
  • By GirlA · Posted February 20, 2013
  • In Neurofibromatosis Network · 6 replies
  • Had good results once again for my B-12 injection. Sensation/feeling was completely restored in my left arm; much of my back and arm pain went away; I feel much more alert, and even a severe headache ...

Severe pain

GirlA
  • By GirlA · Posted February 18, 2013
  • In Neurofibromatosis Network · 4 replies
  • Today I'm having severe pain in my back, arms, and legs. Taking pain killers, but not much help. Also trying to get in contact with my doctor to get a B-12 injection. Haven't gotten a B-12 injection in ...

b12 injection.

GirlA

Wi-Fi Service

GirlA
  • By GirlA · Posted February 12, 2013
  • In Neurofibromatosis Network · 4 replies
  • I'm new to some of this new technology. I have a laptop and want to be able to take it different places around the city (Chicago) and to have access to the internet. I understand I may need to subscribe ...

Things you can do