im in high school. i have good grades so far, i like 2 go out and partty wene ever i cen mosly on sat's, or fri's, but i jest go outr wene i have the monny 4 it heheheh. well im out going im not ashamd of what i have so i talk with otheres about NF so they cen under stand what it is how it cen efect us and all other things 2. i have NF1 i found out about this about, on the day of 10/03/08 wish was kinda soprizing 2 find out that the 3 bumbs on me with brown spota were tumeres... iv learnd 2 kinda live with them all though iv had them all my life the 1 on my nek loks like a hick-e heheh but the 1 on my leg botheres me wene i get kikd there or toshd.....
all i relly got 2 say is dont be ashamd of what u got, dont be scerd 2 let it out maybe on 1 of this u may help some 1 els... whom may need it...!
Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
*~FoXiI LaDy~*
- By Daisy001
- Posted December 11, 2008 at 12:46 am · 2 replies
- Shared with the public
2 replies
- Oldest first
- Newest first
- By Bloomington
- Posted December 11, 2008 at 9:59 pm
- Report post
Hi!Daisy00
I am glad that you are able to make good grades in school, i was't able to do that. it is great that you are able to face your friends every day with nf. and to tell people about it. i am 46 and i found out that i had it in the 11 grade. i try hard in my grades but i could't di it, but i was able to finish. I work at that same high school as a custodian. the kids love me even thought my nf as gotting real bad now and i tell the kid and teacher about it. so you just strong in Lord and letting people no about nf and keep going out and meeting new people.
- By Daisy001
- Posted December 15, 2008 at 1:11 pm
- Report post
oh... well ones in a wiol i do have proublems but mostly on math and in spelling.. i some times have my moments were i do jest go off ond like i jest date dremm but i try not 2 if i nodest im doing it i jest like try 2 pay atenshen andn so yeah it kinda sucks... in a way or 2. and so yeah i jest try 2 let all my friends no i have NF1.
Add to the discussion