My incontinence story.

Hi Everyone...
I have been looking for a support group to help me with physical and physiological issues surrounding my incontinence. I know "they" say I am not the only person dealing with this problem, but it feels like it. Hopefully, I can meet a few friends who understand first hand and feel free enough to discuss it. I guess I should introduce myself and tell my story.
My name is Chris, I am 53 years old, married with a son and stepson. I have been living in Omaha, NE area 25+ years. I have had a great marriage and a great career. Well, the career went downhill about when I was diagnosed with Leukemia, had major back surgery, and many other health conditions that keep cropping up. I have dealt with most of these issues pretty well except for the incontinence.
I guess my problems started when I was young. I didn't stop wetting the bed until I was about 15 and I would have occasional accidents during that time too. Back then, my family tried to keep it a dirty little secret and my mother tried to shame me into stopping. My mother used to make me wear diapers at nightwe had a ritual, I would have to get my diaper, rubber pants, and baby powder lay down in front of whoever was there (friends, neighbors, family) then strip down and have my diaper put on and wear it , without pajamas, until it was time for bed. Constantly being reminded that if I would just stop wetting the bed I wouldn't have to wear a diaper anymore.
Accidents where almost as bad. I remember walking home from school with a group of friends and having to go so bad, I peed my pantsI was mortified, but it got worse when I got home. I was spanked and forced to go outside and play in my wet pants. Later, I was put in a diaper and I had to wear them all the time even to school. I was probably in the 6th grade before I stopped wearing diapers.
When I was in my early twenties I had bouts of bed wetting and some urgency. I went to the Doctor and the ran all kinds of tests and put me on medication and behavioral modification to treat my problems. The treatments worked for a long time. My girlfriend, now my wife, understood and helped me through it.
As the years went by things kind of got better and our lives were pretty happy. Until about ten years ago when it popped up its ugly head again. This time worse than ever. Again I lived at the Urologists and they finally diagnosed me with a very small, neurogenic bladder. I tried medication after medication, electrostatic stimulation, they tried to enlarge my bladder by pumping large volumes of liquid in the bladder and stretching it out. I even went about four years of self-cauterization. Now my wife and I are resigned to the fact that I just don't have control anymore and I wear diapers. We tried the throw a ways like Depends, but they leaked and rustled and I hated them. I finally found a source for reusable, pull-up cloth diapers and LeakMaster plastic pants. They feel more like underwear, they don't leak or rustle under clothes, and I feel secure again.
I still have issues, especially depression. I look at it this way now, God gave me these trials for a reason...I haven't figured out why yet. Maybe I can help someone else through their incontinence trials. Who know!

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Hello Chris, I have also spent my last few years at urologists, as I have been incontinent of urine. My problems started after a bad prolapsed disc a few years ago caused some nerve damage , which eventually affected my continence. I have had numerous surgeries and studies done, and I was found to have a urinary sphincter that does'nt work, and this is what holds the urine in the bladder. My urologist after more tests suggested I have an artificial urinary sphincter put inside, as he felt it may be the best option for me. I am a 56yr old woman, so this was a big step, as most people who have these inserted are men, mainly after prostate problems, which they operate on and they become incontinent. I don't know if you ever heard of this, but it is like an internal toilet system, as it consists of a cuff (which they place around the ureathra) a reservoir balloon to collect the excess fluid that is released when you squeeze the pump, (which is placed in your scrotum). After a few tweaks I am now totally continent of urine while my artificial sphincter is in, so basically to pee you squeeze the pump 2-3 times and then the cuff releases and this allows the urine out, and it automatically will refill back to the cuff keeping you dry.It sounds complicated but it is all internal and you control it with the pump. I have an AMS 800 Artificial Urinary Sphincter.I nearly owned the Tena Lady company before this surgery, now it is wonderful to be in control. Chris I just wanted you to know what has helped me. and maybe it could help you, as I know this problem is no fun, and can rule your life. All the best, and let me know how you are going, and it is good to be in touch with people with the same problems. I hope this helps. Vicki from Aussie.

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Hi Chris i am a little older than you 65 and you are not alone. I have had problems since I was 8 years old due to a childhood illness and continued on and off utill 10 years ago when the bedwetting returned and shortly after did the day weting as well. So I ended up diapered 24/7 over time the problem got worse. During testing they found a blood clot in my spinal Colm. i had it removed but not before it damaged nerves on my left side and most likely my 24/7 wetting problems. After a while I started to develop retainage so I had to self cath and did that for 3 years but I still wet inbetween and still had to wear diaper. It got to the point that the retainage got worse and now I have a foley cath. For me it has worked out well had it now for 5 mounths and have not had at use diapers. I am thinking of having the super pubic Foley done in January. I worked for 6 years with diapers and not once did any one ever notice. They are just a different form of underware. Keep us informed on how you are making out.

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Thank you so very much for your reply. It means a lot to know I am not the only one facing this issue. My incontinence stems from several problems. I have a very small bladder, a childhood illness, I have had several surgeries on my spine due to spinal stenosis which has caused damage to my nevers to the bladder. I have cathed for years had hated every minute of it. I can't even remember all the uti's and kidney problems. I have worn diapers 24/7 most of my life. It is not the best option, but I have sucurety with them. Like you, I have never had a problem wearing them to work or in public. Until something comes along more suitable for my situation, I'll remain in diapers.

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Hi Chris
Like you I have had several surgeries on my spine c-3 that has caused nerve damage and lack of blader control. I would have continued to wear diapers except due to the retention in which I now use a foley catheter. Like you I'll remain this way untill somethin better comes along. We have to do what we can so we can live normal lives

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Please do not feel alone. I have been incontinent for several years due to an inhury I suffered while I was in the air force. Since then it has only gotten worse. Having EPILEPSY, and suffering several strokes, wearing diapers has become a normal part of clothing for me. I have absolutly no warning of when I have to go consequently diaper changing is by the clock for the most part.


















































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Vicki,
Thank you for your kind words and insight. No, I haven't heard of this procedure, but I will be bringing the idea up when I see my Urologist in a few weeks.
Chris

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Chris,
It was great to hear from you. We both have a health problem that a lot of other people wouldn't understand. Do you have a good urologist that looks after you? Mine is great and he specialises in a lot of reconstructive surgery, so when he suggested the urinary implant, I trusted him completely, I didn't have anything else to lose, and it has helped my confidence . I occasionally have to self cath, and I am now dry, and while the implant works I am continent. Let me know how you get on at your Urologist, and it would't hurt to mention about the implant. Keep in touch.
Vicki.

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