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Cara_B's discussions
What do they look like?
- By Cara_B · Posted June 20, 2009
- In Neurofibromatosis, Inc. · 9 replies
- What do newly formed tumors/bumps look like? My one year old has some bumps that the pediatrician said look like heat rash, but she admitted she has never seen an NF patient before (the "rash" has been ...
lack of growth and NF1
- By Cara_B · Posted November 22, 2008
- In Neurofibromatosis, Inc. · 19 replies
- My 13 month old was just diagnosed with NF1 although her pediatrician suspected it when she was 3 months old. Up until this point she was just labeled failure to thrive. I know that NF1 children are generally ...