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Feeling more lost then ever! with medical and education

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A lot has been happening on the home front. Ash's medical team including mental health are changing her dosage of medications, times given etc.

In hopes that the current combination of medications will help in the long run.

What we have found that the changes in her meds has made her more hyper , increased craving for food and thirst non-stop.

One positive thing that happen out of this so far that Ash has put on over 15 pounds in two months. It's a huge gain but it sure help Ash look more healthier so far.

We have to lock our fridge, and cupboards to control what Ash is eating and drinking if not she will eat us out of the house!

Now with Education, well that's totally different As they aren't hearing me. When I say that Ash isn't liking her Fifth grade teach, and that Ash feels that she isn't supported, and doesn't like the change that is going on in her classroom. I can talk to her new teach in till I'm blue in the face and she isn't taking NOTHING IN.
Back in SEPT 08, we had parent teacher interviews, Ash teacher looked at me and ran in to the room then came back out side to the hall way and said that other teachers would like to speak with me. So I said okay.

These other teachers were Resource and Reading, support teachers. They know Ash very good and they understand the complex needs that Ash has.

Once in the class room , Ms Jordon & Ms Valentine , said that Ash is struggling with the new teacher (witch I all ready know that) and they feel that Ash's IPP from June of last year will NOT Change as Ash needs to working on the same goals set fourth from last school year witch I agreed. So the meeting went on they said what they had to say then I looked at my daughter home room teacher Ms H and asked her, did you have a clue that my daughter has IPP in place? She replied NO, then I asked Ms H did you look at Ash school file yet? She replied NO, then I asked Ms H, Did you know that Ash is coded, has seizures and other disabilities? She Replied NO! then I said MS READ her school FILE, follow recommendations set fourth by OT, PT, SPEECH, Mental Health, and other teachers.

Once I looked around the class room My daughter pointed out her desk ,, Way in the back of the classroom , then I asked my daughter Ash, Can you see from back here? Ash replied NO mommy I tried to tell ms H but she didn't response. then I Asked my daughter Ash can you hear Ms H clearly from back here . My daughter Replied NO mom.

That really pissed me off, So I went to the teachers and say READ that school file. At this present moment you aren't meeting the needs of my child. and what the IPP set fourth. then I said you all of people should know the needs of each and single child in this class room. So when you do need to call the parents you better have good reason.

Ms H had called me two months straight complaining about my daughter and NOW I understand why my daughter is doing what she is doing.

The class room is LARGE, there are two classes 30 kids on each side, with a curtain splinting the 4/5 class
The class is out of control, no extra supports are in place, No Nothing.

So I went to the Principle and she replied I can't do anything because we are under enrolled we have to make changes , funding is cut back, we are limited.

Explore topics in this journal entry and replies:

Epilepsy Speech therapy Mental health Seizures

3 replies

I know you posted this about a month ago, but I just want to say kudos to you mom!!!!!! Way to go! Thats so awesome to see such strong support for the kids! It's almost scarry to see just how many people are out there in these 'educational' fields (even Dr.s and nurses) who haven't a clue about Epilepsy or most disabilities! I see here in the states, more and more commercials about Epilepsy and even restless leg syndrome...which I totally commend! Good for you mom! She is a lucky girl to have someone like you on her side, there are many parents who are intimidated and back off and are scared to 'fight' for their kids. I think yer great! I've had Epilepsy since I was 5 and my mom was like you! I feel truely blessed as is your daughter!
Dawn

Hi,
I'm a teacher. From what you are saying, I'd take your concerns directly to the Superintendent of schools. Teachers are required to follow IPPs/IEPs/504s/FBAs and such and should know every child who has one in their classroom. If they are not being serviced correctly, you have a legal right to file against the school until those services are met properly. Also, that teacher can be held liable for not meeting and getting the proper information on medical conditions if anything wre to happen. I had a student whom was diagnosised with Epilepsy during Christmas break last year. I was given a basic crash course on how to handle anything that happened with her. I'm glad I did because, she had an episode on a day that I had to be called out to speak with another parent. The nurse and the asst. admin came up. I told them that she wasn't feeling right and demanded that they call the squad for her. Good thing I did because she did seize only it was a small one and they didn't realize it. They figured it out at the hospital.
I'm glad you are advocating for your daughter. Take it to the next step because they aeem to just not be getting it!

I don't know how things work in Canada but in America we have section 504 the disability act.
I attend IEP meetings every year and discuss(demand) what I want for my son. Occupational, Physical, and Speech Therapy personal aide. I also request my son be placed in the front of the class due to poor vision.
There has to be something similiar there. I know it's not easy finding the help you need but it's there if you do your research.

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