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This is for my daughter
Again its' been a while since I last posted
- By CanadaNuse · Posted July 4, 2009
- 0 replies
- A lot has happened since we last posted. Current Up date from NIH isn't going to be clear cut and to the point. All it say's that my daughter Ashley case is more complex then they thought! Yesterday July ...
It's been a while since I last posted
- By CanadaNuse · Posted December 22, 2008
- 2 replies
- Well the year is soon to come to the end, and new year will bring us hope joy, and laughter. We have a lot of things to due before June 2009, that's when Provincial Summer Games are being held in St ...
Feeling more lost then ever! with medical and education
- By CanadaNuse · Posted November 17, 2008
- 3 replies
- A lot has been happening on the home front. Ash's medical team including mental health are changing her dosage of medications, times given etc. In hopes that the current combination of medications will ...
Its been a while since I last posted!
- By CanadaNuse · Posted August 21, 2008
- 2 replies
- There has been alot going on, since our last post, and honestly I don't know where to start. We had over TEN doctor visits and still not closer to anything. But we keep on getting more clinical DX for ...
quick up date on our daughter.
- By CanadaNuse · Posted July 17, 2008
- 1 reply
- Okay, it's been over five months since we sent our daughter Ash blood to NIH for screening, and all we heard so far is that our daughter Blood only shows one copy of RAI1 gene. Ahhh so what dose that ...
We did the Blood work for SMS
- By CanadaNuse · Posted February 29, 2008
- 0 replies
- Well we did the blood work at the begin of February, and now all we can do is wait. And wait, Mrs Ann Smith said that she will call or email me if they found any thing out of the blood samples that my ...
SMS.. Study. Just the start...........
- By CanadaNuse · Posted January 25, 2008
- 0 replies
- Well we have just started working with Ann Smith with NIH, who is co-finder of SMS, and she has been wonderful and helpful in this matter in trying to getting a diagnosis for our daughter NOW who is 10 ...
Things aren't getting any better
- By CanadaNuse · Posted October 29, 2007
- 0 replies
- Man, When I thought things couldn't get any worse they did! Seeing my daughter go through test after test and notthing showing. Makes me wonder if they are ever going to find any thing. The fear of unknow ...
just scared/venting.
- By CanadaNuse · Posted October 2, 2007
- 2 replies
- They keep on telling me that my daughter Ashley has something but what is it? I have ruled out the most common rare syndromes and diseases. As more time pass by more and more I notice my daughter slipping ...
School is still pushing for the mental health worker.
- By CanadaNuse · Posted September 25, 2007
- 0 replies
- Man the school isn't going to lighten up about the MENTAL HEALTH WORKER! even though I told them that there services aren't needed. And we have enough services in place at home and in the medical community ...
Out right peeed off with the trick that the school pulled
- By CanadaNuse · Posted September 18, 2007
- 3 replies
- Out right pissed off what the school did, they said they needed me to sign this release form for school services OT, Speech and for TA (teachers assistant) that is it. But the matter of fact is that the ...
Wonderful New From Parent Teachers Interviews
- By CanadaNuse · Posted September 13, 2007
- 0 replies
- On Wednesday September 12th, we had our first parent teachers interviews with Ashley new school teachers. During our 40 min meeting, All they can say was positive things about Ashley and how proud they ...
An other set back.
- By CanadaNuse · Posted September 8, 2007
- 0 replies
- An other set back, My daughter teachers, are saying that Ashley can't read the black board and they have moved her and the group up front in the class, to assist her. Even then she isn't able to see the ...
So far so good.
- By CanadaNuse · Posted September 6, 2007
- 0 replies
- So far so good, Ashley teachers in her new school is taking the steps, to make sure that Ashley is getting the level of education that she is learning at. Witch is wonderful news. It seems that Ashley ...
Stressful first day of school
- By CanadaNuse · Posted September 4, 2007
- 0 replies
- Well today couldn't been more stressful for me , I was stressing for every one. more then I should but it happened. The first day of school is under our belt and now we have to wait and see how things ...
Less in 24 HRS new school year starts!
- By CanadaNuse · Posted September 3, 2007
- 0 replies
- Less then 24 HRS , OUR family starts a new Journey, that we soon wont forget! This Journey is the one we weren't ready for. The PUBLIC SCHOOL SYSTEM.! Even though we met with her new teachers last week ...
School Meeting this morning
- By CanadaNuse · Posted August 31, 2007
- 0 replies
- Well We are having a school meeting with my daughter new school and her teachers. On Wed I spoke with the staff at the school and they said that we will meet before the week is done. and it did happen ...
Test results are in............
- By CanadaNuse · Posted August 29, 2007
- 0 replies
- I just got off the phone, with RN from medical genetics, and well here it is.. Abdominal ultrasound, NEG Serum androgen , NEG Testosterone, NEG 17- Hydroxyprogresterone _ Waiting to hear............ This ...
Aggressive Behaviours .......what to due next ?
- By CanadaNuse · Posted August 27, 2007
- 0 replies
- It all started when I found my daughter old snow gear witch was to small for my daughter, I took it up stairs to my mom to ask her if she knew of anyone who has a child my daughter age that would benefit ...
I wonder.......Dose it really have to be....
- By CanadaNuse · Posted August 27, 2007
- 0 replies
- I have all ways wondered why did god chose me to parent this wonderful little girl . I know that through out my life my grandmother all ways told me that God only gives you what you can handle. But At ...