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CanadaNuse's discussions
We might have a lead on A Diagnosis~SMS!
- By CanadaNuse · Posted September 9, 2007
- In NORD Rare Disease · 1 reply
- On Friday, I received an email from my daughter "Ashley" genetic team, stating that even though "Ashley" had a normal work up for X Chromosome when they tested for Fri gale X, They think that If they ...
Destructive Behaviours
- By CanadaNuse · Posted August 27, 2007
- In NORD Rare Disease · 2 replies
- It all started when I found my daughter old snow gear witch was to small for my daughter, I took it up stairs to my mom to ask her if she knew of anyone who has a child my daughter age that would benefit ...
Desperate seeking answers, to long growing lists
- By CanadaNuse · Posted August 17, 2007
- In NORD Rare Disease · 0 replies
- Hello every one, My name is Rose, Proud parent to one wonderful nine year old daughter. It seems that with each visit more clinical findings the find. BUT we don't get any answers! Sorry this list is ...