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What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
I am pleased to present Inspire 2.0 -- the result of many months of fun and hard work.
We have made numerous improvements to your community, the vast majority of which are ideas that came from you! We think you'll be pleased -- and that you'll find Inspire even more helpful, safe and engaging.
I'll write more soon. Meanwhile, please stay in touch and let us know how we're doing.
Thank you,
Brian
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Cancer Confusion Isaac's syndrome HPV Osteoporosis Cervical cancer Bladder cancer
Hello Brian
I applaud you & the team that put this site together & the time you spent
However, I can't find the Isaac's Syndrome site which had some very useful information
I know it's very active & I posted there 2 days ago
It was very easy to access the Isaac's site when I received my daily newsletter - all I needed to do was click on Isaac's Syndrome & it would take me into the site and I found this very useful
Maybe old age is setting in & it's just me !
Thanks again for your efforts
Very best Regards
Rick Thurbon
Sydney Australia
Hey Rick. All of the Isaac's posts from the old site should be in the Rare Disease Support Community:
https://www.inspire.com/groups/rare-disease/members/
That group is equivalent to the single site that you belonged to earlier.
We're going to add search back to the site this week. We had to remove it to complete the upgrades. Once it's back, you'll be able to find Isaac's syndrome posts just like you used to. In fact, I think you'll be able to find more posts than before.
Hope that helps,
Walter
What happened to the NOF website that had been in existence for at least a year? Explanations would have helped. Betsy in Glen Ellen
Betsy,
Thanks for writing. The NOF site is right here:
http://www.inspire.com/groups/national-osteoporosis-foundation/
...and although it looks different, all the content is exactly the same, and nothing else has changed. Sorry for the confusion; please let me know what you think.
Brian
How do you just find your own area of interest? I am having a hard time finding my old discussion group and blogs for osteoporosis. We all communicated with each other and now there are many different areas of concern to different people. Is it possible to just get updates and emails from your own area of concern?
Thanks
I concur with Betsy! Not a good way to handle a transition.
I shan't yell at you, Brian, but we of the NOF Community have not been very happy the past few days.
Much wasted time and lots of frustration.
Not introduced to us very well at all.
We shall try to adapt -- hope we did not lose too many folks in the process!
Hi Brian
I am new to site and have tried to go to recommended topics as I see yours is. The result is that there are no recommended topics. What am I doing wrong?
Although there have been slight improvements over the old site, I am not at all impressed with the finished product. Did any of you help develop Windows Vista? That's not going so well either.
Hi Brian,
I just need to say thanks for what you do!!!!!! I am so grateful for this sight!!! It appears I am loosing my 52 year old husband to this nasty thing called "cancer"....This sight has helped me through different people. Thank God for people like you.
Thanks again,
Rox (Roxanne)
Hey,
Me again......I just clicked on menopose and nothing happened??????? Did I do something wrong??????
Rox
HI!
I find it all a little confusng and am glad to see I am not being "thick" and others have issues with finding things too!
Suppose I will learn eventually! Thanks anyway!
Chris
www.mypeggypeg.blogspot.com
I appreciate the work by Team Inspire and Bladder Cancer Advisory Group for the tremendous efforts you are putting in, to encourage us to LIVE and share some of our problems. After the merger (?) of Bladder Cancer Advisory Group and Team Inspire and the new look etc, there is more information available for viewing and responding.
Although in the daily updates, it is arranged datewise, some method of grouping specifc queries/ responses (to the extent they appear somewhat related) will be useful. I am not sure whether the daily updates we get is done automatically by the computer servers or human filtering is there. Anyway, some reduced and somewhat focussed intakes in daily updates will be useful. I am not sure whether this can be done. If difficult, due to short of human resources, it is fine. Present updates are OK.
With regards and once again appreciating the good work being done by the teams.
Govindarajan.
I hate this new site!!! when i click on topic it will not let me read what they wrote... how the hell do i get to what they wrote?
I would love to have my site just like it use to be
with all my information and blogs still on it...
and many of the blogs that I loved so much...
BUT, that is just me...Raena
ALL i want to do is have the site do what it did before.
I want just the group with FSGS. This is about all I can handle right now. This is a hard thing to LIVE with.
Please get it back.
Doris
Right now All I want to do is just talk with the ones
with FSGS. Where has all that gone?
The old way was better.
Doris
It is so nice to see how others use their bed side matters. We are all here to help each others and encourage, Sometimes in life we must learn to change. Gracefully.
Jannie
Detroit, Michigan
Sorry, this journal entry is closed to replies.
Brian
At the National Cervical Cancer Coalition (NCCC) we are excited about the new update and new look. We are glad to be partnering with you and sponsoring our cervical cancer and HPV community. I'm confident our NCCC members here will enjoy the new updates and appreciate the INSPIRE desire to keep improving our community online.
Best regards,
Alan Kaye and staff and NCCC members